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I have to open myself up again, for the powers that be.
I have to retell it, relive it all.
I have to prove my illnesses and disabilities, whilst fitting in the predetermined boxes – designed for some of us to slip through.
I have fallen through the lines, the pages, told “there is nothing we can do for people like you”.
“You’re too ill”.
Jumping through hoops, running up hills – against the torrential down pour of sociatal expectations.
All this is done whilst the 1%, the bourgeoisie, the privileged watch on, as they stuff their faces with our human rights.
The media uses us as scapegoats, for the ‘outraged’ to demonise us, with the misinformation they are brainwashed by – we, the ones at the “bottom”, we bring it on ourselves.
Illness is equated with laziness, disability is questioned as being unmotivated.
The seen, the unseen and no details in between.
My work is unpaid and thankless, the sick leading the sick.
I don’t want this feeling of being less than, for being unable to fit into an imaginary “type”, conjured up by able, privileged puppet masters, pulling strings, herding the “deserving” humans into their boxes, and the undeserving to their coffins.
It’s World Art Day and SANE – The Mental Health Charity asked me to do a drawing to celebrate and raise awareness of how affective art can be to help with mental illness.
Art saved my life. Not figuratively, but literally. I was at the end of the road in 2010, after suffering my 4th severe break down. I was suicidal and told that there was no support for me. I then stood at a cross road, with a paint brush in one hand and a self distruct button in the other.
Then I just started to paint.
I am able to communicate with art, sort through painful memories and help create change for others by raising awareness regarding mental health and the stigma people like myself deal with due to having mental illness.
I encourage people to find a creative outlet this world art day, you won’t regret it.
Please support SANE and if you need help or resources follow the link to find out more:
The mechanics within my mind make a clunking sound, grinding wheels against each other, like fingernails on a chalkboard – the sound vibrates through my ears making my eyes weep. This pain occurs intensely, it’s sensory – losing control of reality.
Am I machine? Or is this mechanical device planted inside my head? Confusion bubbling inside, like a kettle steaming and churning, spilling over.
Reality seeming far away, too far to reach. Having found it before – I can find it again. Did I ever “have” reality? Was it something tangible, that I could touch and claim for myself?
The thoughts fizzing in my brain, as if someone has shaken me up like a soda can – eventually opening me, to explode.
My faculties are dimming, my sight is heavy and my limitations are apparent, there is no resolve in this paradox.
Soon my eyes start to close, lucid dreaming begins. Seeing myself step out of my body as if it were a costume, walking toward vagary.
Is this now my reality? Or was reality something I left behind?
Consciousness is waning, leaving me like an empty vessel.
The realisation that control was never in my possession – my last responsive thought before darkness.
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no longer seen
in our minds
all wrapped up
in the abyss
my only company.
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smoke into the night
smoke into the morning
a kind of healing
reflecting the storm
shackled to distraction
narratives of others
is not peaceful
it does not recharge
smoke fills my view
smoke keeps me amused
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When identity is unstable life can feel as if you are staring through a mirror wondering what the “other side” means ?
Like Alice who questions the world on the other side of the mirror’s reflection – before stepping through and entering an alternative world; our concept of self is greatly developed from infancy through our interpersonal interactions and mirrored back through society. Suggesting that we have a tendency to understand ourselves through our understanding of how others see and judge us; this is thought to be how we develop and understand our own identity.
As a child we learn how our crying, smiling and silence elicits a response from our caregivers, this forms our first mirroring and understanding of how we are perceived and responded to. This continues throughout our interactions and learning.
“The thing that moves us to pride or shame is not the mere mechanical reflection of ourselves, but an imputed sentiment, the imagined effect of this reflection upon another’s mind.”
(The looking-glass self is a social psychological concept introduced by Charles Horton Cooley in 1902 (McIntyre 2006). The term “looking glass self” was coined by Cooley in his work, Human Nature and the Social Order in 1902.)
There are three main components that comprise the looking-glass self
(Yeung, et al. 2003).
As a person who has Borderline Personality Disorder (BPD) – identity is something which has always been an issue for me and so many other sufferers. My entire life seems to have been an identity crisis and it is one of the 9 traits you have to have in order to be diagnosed with BPD.
The specific issues which concern the stability of self in BPD sufferers is exhibited in:
Kenji Kameguchi (1996) likens boundaries to a
“membrane” that surrounds each individual and subsystem in the family. Like the membrane around a cell, boundaries need to be firm enough to ensure the integrity of the cell and yet permeable enough to allow communication between cells. Overly rigid boundaries might constrict family relationships and limit family members’ access to one another (e.g., “children should be seen and not heard”), whereas overly permeable or blurred boundaries might lead to confusion between the generations (e.g., “who is the parent and who is the child?”
“I don’t know who I am”
“I don’t know what I want”
“I don’t know how I should handle this situation”
These questions seem harmless to most – however when you have BPD these questions are so confusing that emotional stability is compromised and becomes dangerous if we are not supported or receiving some kind of treatment. These questions are second nature and the answers come to mind with a certain amount of ease when you do not suffer from psychological identity issues – something taken for granted by most.
When you have BPD you are seen by different people as polar opposites at different points in your life or even at the same time, such as myself; I am seen by many in my life as a self righteous, egocentric, judgemental, scary, aggressive, rude person. However I am also seen by many as an inspiration, kind, loving, empathetic, polite, selfless person. Many people without BPD may encounter this kind of reaction from certain people, contradicting what makes you, you. This doesn’t phase well adjusted stable personalities as they know who they are and realise they are probably a combination of things to different people due to differing interactions and other peoples personalities. With BPD this causes self annihilation, an instability of emotions and further fragmentation and less awareness of the self.
“who do I believe – me or me or you”
In truth – at times I feel as if my identity is a game of guess who; or that this confused dissociated state is in fact a malevolent monster controlling and interchanging me – to torture me.
Friends, family and people who have crossed my path along the way will have no idea to a certain extent that these different identities exist within me or at different times in my life. The ones who remember are those who I have split, those who got to meet the protective identity, the no empathy, unforgiving, hateful identity – who has kept me alive in times of pure distress. These people have gone from being idealised to then being devalued and thrown away. The hardest part is being aware of this, of others being more aware of this – knowing I can rip you off the pedestal in which I created for you at any time just because you reveal to me that you are in fact human and fallible.
Sometimes the mirror reflects back that no one really knows me, so in turn I can’t know myself – which then brings about the depersonalisation and not feeling as if I exist at all.
The looking glass is the perfect metaphor for how this feels – knowing one reflection is in one world and another in the next. Feeling unreal or full of identities fighting to be seen or wanting to hide. Not knowing when in front of the mirror – who will reflect back.
Hiester, M.”Who’s the parent and who’s the child: generational boundary dissolution between mothers and their children.” paper presented at the biennial meeting of the society for research in child development, Indianapolis,1995.
Yeung, King-To, and Martin, John Levi. “The Looking Glass Self: An Empirical Test and Elaboration.” Social Forces 81, no. 3 (2003): 843–879.
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There hasn’t been a day since being 11 years old that I wasn’t prepared for my Mother to die. There is no scenario in which my mind has not investigated or planned; from her funeral, what I shall say, how I will feel, who will judge me as the cause of her death. This is not due to a macabre obsession or a morbid wish, this is how it feels to be the child of a suicidal parent.
My Mother has Bipolar Disorder, she was diagnosed when I was a toddler after seeking help because she couldn’t connect with me and feared she didn’t love me. My awareness of her illness was not completely realised until attending secondary school, before this point my Mother was a workaholic and never cried, she was a passionate, opinionated, clever woman who people loved to be around, the life and soul of most parties and fancied by most men. Always doing what she wanted when she wanted and never apologised for living her life. Even when she would drop me off to friends so she could meet men on trips away or when she made fun of my weight or told me I was too sensitive or too serious – my adoration for her was impenetrable, thinking of her as the best Mother in the world and wanting to be just like her.
However my Mother had a sever break down. Suddenly this vibrant woman was in bed, unable to get up, dress herself or wash, her room was dark and filled with cigarette smoke. This made no sense to me, I did not understand why she had changed; it was like Invasion of the Body Snatchers – this wasn’t my Mother. Suddenly she was crying all the time and she didn’t want to do anything, she would watch daytime TV in bed and would be surrounded by books, paper and food wrappers.
Life hadn’t been easy up until now for many reasons for both of us, having experienced depression and loneliness at the age of seven, this new darkness took it’s toll and this was when I started self harming. After seeing a program on a TV talk show about self harmers, after hearing of how these people felt the pain go away and that they actually felt even better whilst cutting, this seemed like the ideal relief. Knowing my Mother had lots of books on psychology and psychiatry I asked her if she had anything on self harm and said it was for a school project, (which for the early 90’s would have been very progressive). My Mother found me a book on self harm and I took it to my room and started to plan my first cut.
A few weeks later I caught my Mother in the bath weeping and cutting herself with razor blades, a mess of tears and blood through the crack of the bathroom door. Shocked that she did it too, shocked that she was in pain and devastated that I had possibly caused it or was going to cause more. In hindsight this is when my Mother and I truly severed our relationship, it was the beginning of the end, even though we were almost on the same page, my need for a parent and stability and her need to be alone and have no responsibilities was like a knife slicing our family tie.
Soon after this my Mother tried to kill herself and she was admitted to a psychiatric hospital, I was left at home alone with our 18 year old lodger (who was very unwell herself) and was allowed to do what I wanted, structure and adult care went out the window. Upon turning 12 I stole some sleeping pills from our lodger and tried to kill myself, instead of dying, sleep was all that was achieved for almost two days and awaking to the realisation that the darkness still existed, there were still no adults or safety.
From this point on, again and again, my Mother tried to kill herself or self harmed to the point of needing hospital treatment. This is when preparation for the inevitable was my only solus – her death. Having lost my best friend to suicide and many other friends; suicide became such a possible outcome that I started being unable to determine when my Mother was actually in danger. She would say “If I didn’t have you I would die” or “I want to die – there is no point”, always reminding me of how much I didn’t understand, how no one understood – when all the while I understood more than she knew.
After several hospital admissions, 17 ECT sessions and continued private therapy from her psychiatrist on Harley Street in London, it was clear my Mothers condition was getting worse, no cocktail of drugs seemed to help and the bipolarity of her disorder caused havoc on our lives. My Mother experiences mixed states with her Bipolar Disorder which cause her to be irritable, to have high energy, racing thoughts and speech, and over-activity with agitation and becomes an even higher risk of suicide.
This effected me as a child and teen and still does now as an adult. The instability of her impulsiveness, her recklessness and her allowing me freedoms that other children envied, which I did not like or want, I envied the children who sat down for dinner, who had curfew, got money for chores, did homework with their parents, had rules; whose parents wouldn’t discuss anal sex with your friends or discuss their many sexual escapades. In mixed states of mania she would become aggressive, argumentative and so unkind that this emotional abuse still causes me sever pain till this day; name calling, screaming, mental abuse and belittling me with the advantage of not remembering what she had said or done when she was feeling “better”.
There is one act which however hard I try – my mind cannot understand it. When I was raped at 15 and hospitalised as suicide is all I wanted, my Mother made my rape about her and ended up abandoning me and admitting herself to a private hospital (with room service, massages, ice cream) whilst she had stopped my private health insurance (as you do) so I had to go into a mixed boy/girl NHS adolescent unit situated on an old Victorian asylum ground. How could my Mother consider suicide when her baby had been violently raped, operated on due to the rape and then hospitalised? The doctors would ask me how I felt about her doing this, I would always protect her regardless of the fact I was so hurt and felt so unloved.
At 17 she became physical with me on the day I was moving out as I could not take living with her anymore, this truly became my only option to survive, she began to shake me, she slapped me and then she tried to push me into a single pane glass window on the fourth floor of our apartment building. In amidst of this she was shouting at me that I was a whore and that I had probably made up my rape. My boyfriend (who is now my husband) had to pull her off me and at the age of 19 had to confront her with some very stern words and managed to get me out of there.
Another aspect of her mixed states is that of mass overspending which she has done to the extent that all our family money is gone – to be fair my Father contributed to this too with his mental break down. However my Mother seemed to have plenty of money to buy Louis Vuitton bags and accessories, take long haul trips and buy expensive cars, but when money started to get tighter and tighter as the money became less and less, she became selfish and from 17 to 22 let me be homeless, go hungry and I had no access to medical care or dental care, I was very unwell at this time so needed a lot of extra support – but her need to keep up appearances and maintain some of her luxurious lifestyle came before my needs. Anyway it was my own fault after all for being a bad child.
My Mother withdrew from life, hers and mine and as a consequence her sadness took over our relationship and her own guilt for how she has treated me – chokes her just enough to say what a terrible Mother she was or is, something which makes me want to protect her, deny and tell her all is fine, I am fine and she is fine. But her withdrawal made me withdraw from her more an more emotionally, so to not get hurt when she eventually kills herself. Hugging her is painful, when she cries I want to stuff a sock in her mouth – when she complains about her life I want to be anywhere but near her.
Loving my Mother is not hard, liking her is impossible at this point and wanting to have a relationship with her is damaging. However the feeling that at any moment I shall get a call telling me she has died is always there, the preparations are always in place and the guilt consumes me. The illness, the Bipolar Disorder is not my Mother however her core personality and ability to care and love for me is a mixture of narcissism and emotional blackmail.
Who knows what will happen with our relationship, all that is evident to me at this point is for anything to be possible with regards to my Mother is a question of recovery and acceptance. Not forgiveness, we do not need to forgive abuse, however accepting it happened, and that it was not my fault is probably a better focus than my obsession that she will take her own life.
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This is our journey so far…
Amadeus is a 13 month old standard poodle who is my psychiatric assistance dog and he is helping me gain some independence, access to the outside world, exercise and he also gives me things I can not get from human interaction. The conditions and illnesses which Amadeus aids me with are Complex Post Traumatic Stress Disorder, Agoraphobia, Generalised Anxiety Disorder, Borderline Personality Disorder, Psychotic Depression, Obsessive Compulsive Disorder, and Autistic Spectrum Disorder.
The requirement for me to have an assistance dog was in fact my last hope in having a more fulfilled life, in this able focused and neuro-typical world. Due to sever mental illnesses I have been unable to lead a “normal” life for over 11 years and some things have never been achievable.
When using the word “normal”, I use it in the sense that many things achieved by able people are taken for granted, such as being able to leave your home with ease everyday, crossing roads, being outside independently, going into shops and other establishments, speaking to strangers or service people, taking public transport, being able to drive, listening to music on headphones, meeting friends, going to hospital/doctor appointments…
Very kindly a close friend of mine started a GoFundMe page and raised enough money for me to get Amadeus and all the things we needed to get the show on the road. People from all over the world donated and before I knew it, we were taking Amadeus home and the rest is history.
So in under a year I have achieved a great deal with Amadeus; starting with simply stepping outside my front door with him and closing the doors behind us whilst no one else was home – this was my first and most challenging of exercises.
Then we walked up the road and started with the closest cul-de-sac, completing this for up to two weeks at a time, then moving onto the next. Eventually mastering three and staying in this comfort zone until I was ready to go past a busy pub and cross a small road by a large cul-de-sac. By this point I genuinely was astonished by my progress and felt a sense of freedom which would make me promise myself to never let go or go back – a lot of pressure but I have no “happy” medium abilities, it is black and white or nothing.
After this achievement my sights were set on going further up our road to a small green in front of an old Victorian prison, knowing this would be ideal for Amadeus to do his business and for me to be near some kind of nature – with trees and grass (even though it is next to a main road and very busy roundabout). This feat was very challenging, managing to do this once a week and slowly progressing to be able to do it more regularly over several weeks, before committing this as the place we would walk everyday.
By this point Amadeus was getting to be almost one and a feeling of rebirth flowed through my veins. So one day impulsively I decided to go the other way from my front gate, up the road and over a busy bridge to the cemetery behind my house, as this was something I could do without crossing any main roads – plus it would give me an abundance of nature, things to look at and a longer walk for Amadeus.
However this was impulsively done which was me jumping up my ladder and not safely stepping up one rung at a time, which is a trait due to my Borderline Personality Disorder (BPD). This meant I was wiped out for almost two weeks due to the exhaustion of doing something so outside of my comfort zone, which of course made me have sever anxiety symptoms – even though at the time it was enjoyable, but when you get the same adrenaline from walking up the road to a cemetery as someone bungy jumping or sky diving – it can be a really surreal feeling.
My next challenge is crossing a main road in front of my house which luckily has a pedestrian crossing and then walking straight down small residential roads to a beautiful pond and recreational field. My plan is to try and achieve this, this summer, which will be my greatest achievement so far. Amadeus will be able to go off lead in the field, we can walk around the pond, watch the wildlife, sit and read or listen to music; it is something I dream about constantly.
Even though this has changed my life, there are still days I can not go out, there are days when being outside is like being assaulted by every piece of sensory information at once, leaving me unable to process details and all I can do is rest and recover.
So if you have never thought of how privileged you are to leave your home in a carefree manner and when interacting with the outside world and its tasks it is no big deal to you; then I challenge you to think of what your life would be like if you were unable to do these things?
As a small art project I documented my journey so far with Amadeus and distorted the images to show the different sensory issues I encounter when outside. This was challenging as simply taking the photos by busy roads was disorientating, however with Amadeus keeping me grounded and helping me feel present and real I was able to do a lot more than I thought I would. There is a slide show, all images underneath and some videos.
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