I have to open myself up again, for the powers that be.
I have to retell it, relive it all.
I have to prove my illnesses and disabilities, whilst fitting in the predetermined boxes – designed for some of us to slip through.
I have fallen through the lines, the pages, told “there is nothing we can do for people like you”.
“You’re too ill”.
Jumping through hoops, running up hills – against the torrential down pour of sociatal expectations.
All this is done whilst the 1%, the bourgeoisie, the privileged watch on, as they stuff their faces with our human rights.
The media uses us as scapegoats, for the ‘outraged’ to demonise us, with the misinformation they are brainwashed by – we, the ones at the “bottom”, we bring it on ourselves.
Illness is equated with laziness, disability is questioned as being unmotivated.
The seen, the unseen and no details in between.
My work is unpaid and thankless, the sick leading the sick.
I don’t want this feeling of being less than, for being unable to fit into an imaginary “type”, conjured up by able, privileged puppet masters, pulling strings, herding the “deserving” humans into their boxes, and the undeserving to their coffins.
Having any unseen illness is a struggle and for obvious reasons. Some say mental illness is not a physical illness which I strongly disagree with, how can the brain not be physical? Having had severe psychiatric illnesses since the age of 11 would make some assume I would be well adjusted by now or even that I must know my own illness through and through. These are all incorrect assumptions.
The fact is my life has become more of a struggle with age. Being 30 now has made me want to take charge more than ever but to my surprise it is proving far harder than I would have imagined as my younger self. As a young teenager I did not understand and just felt out of place and suicidal. Then as an older adolescent I just became reckless and would put myself in dangerous situations. My twenties became a decade of denial, I did not want medication, therapy, hospitalisation or even to really admit my illnesses to my friends. I drowned my emotions and masked symptoms and behaviours with alcohol and drugs.
However, mental illness does not just disappear in fact it spreads like an infection and causes more illness until the infection is so severe the body crashes and there is no other option but to admit defeat and seek medical attention. This is what happened to me at 28 and has been a uphill struggle since. Although this has made my life more difficult it has not stopped me having a successful marriage and a progressing career.
A detailed list of the unseen illnesses I suffer from
Here is a list of my unseen mental illnesses the definition and severity. The list is done from the most severe to the least. As well as identifying which illness (untreated) led to another.
Post-traumatic Stress Disorder – develop after a person is exposed to one or more traumatic events, such as sexual assault, warfare, serious injury, or threats of imminent death. The diagnosis may be given when a group of symptoms, such as disturbing recurring flashbacks, avoidance or numbing of memories of the event, and hyper-arousal, continue for more than a month after the occurrence of a traumatic event
Borderline Personality Disorder – is a cluster-B personality disorder, is a pervasive pattern of instability in interpersonal relationships, self-image and emotions. Impulsive behaviours, self-injury, experiencing severe mood swings, feelings of emptiness, and intense anger.
Depersonalisation Disorder – is a mental disorder in which the sufferer is affected by persistent or recurrent feelings of depersonalization and derealization. It is classified as a dissociative disorderand an independent neurotic disorder. Feeling disconnected from one’s physicality or body, feeling detached from one’s own thoughts or emotions, feeling as if one is disconnected from reality, and a sense of feeling as if one is dreaming or in a dreamlike state.
Agoraphobia – Anxiety about being places or situations from which escape might be difficult or in which help may not be available in the event of having a panic attack. Situations are avoided or endured with marked distress, many require a carer or companion.
General Anxiety Disorder – is a neurological anxiety disorder that is characterized by excessive, uncontrollable and often irrational worry
Panic Disorder – is an anxiety disordercharacterized by recurring panic attacks. It may also include significant behavioural changes lasting at least a month and of ongoing worry about the implications or concern about having other attacks
Obsessive Compulsive Disorder – is an anxiety disorder characterized by intrusive thoughts that produce uneasiness, apprehension, fear or worry (obsessions), repetitive behaviours aimed at reducing the associated anxiety (compulsions), or a combination of such obsessions and compulsions.
Diabetes – Diabetes is a condition where the amount of glucose in your blood is too high because the body cannot use it properly.This is because the pancreas doesn’t produce any insulin, or not enough insulin, to help glucose enter the body’s cells – or the insulin that is produced does not work properly (known as insulin resistance).
Polycystic ovary syndrome (PCOS) – is a condition in which a woman has an imbalance of female sex hormones. This may lead to changes in the menstrual cycle, cysts in the ovaries, trouble getting pregnant, fatigue and chronic pain.
Anorexia Nervosa (Restricting type) – individual does not utilize binge eating nor displays purging behaviour as their main strategy for weight loss. Instead, the individual uses restricting food intake, fasting, diet pills, and/or exercise as a means for losing weight.
Chronic Erythema nodosum – is a type of skin inflammation that is located in a part of the fatty layer of skin. EN results in reddish, painful, tender lumps most commonly located in the front of the legs below the knees. With chronic pain and tightening of the skin.
Depressive Psychosis – refers to a major depressive episode that is accompanied by psychotic symptoms.
With these unseen illnesses it is hard to explain on any given day why I can’t do what I need to do, or why some days I am able to do these said things. As someone who as had these issues longer than not, I am unaware sometimes that people take me at face value and as I appear “well” or “normal” to a certain extent people can often disbelieve if told or just can’t understand as I am not in a straight jacket, rocking in a corner, dribbling or fit into any other misconception or stereotype people have about mental illness.
So this can prove to be very distressing in our world. As a survivor and someone who will not give up, I am left with only one option and that is to share my story, educate and break down these rigid ideas of what mental illness is. Mental illness does not mean you cannot have a life, friends, family and a career. However it does mean you may need to alter your opinions on what social norms you wish to follow or like myself hope to create a diversity in our society that will accommodate us all better. Such as attitudes towards work, money, health care, relationships and appropriate behaviour. These are all areas which may need to be reinvented and philosophised to draw the best conclusion for your life.
You will still be met with certain attitudes and archaic beliefs.
TOP 10 WORST THINGS SAID TO A PERSON WITH MENTAL ILLNESS
“Don’t tell people you have mental health problems, they will not understand.”
” You always seem so happy, confident, well… I can’t believe you have a mental illness.”
” Everyone feels like this sometimes.”
” Why can’t you work in proper job?”
” Stop focusing on the past, negative, bad times…”
” Get over it!”
” You would be fine if you just went out.”
” Your illness is a state of mind.”
” Stop mentioning your illness it brings people down and makes you seem like an attention seeker.”
” I don’t believe in mental illness.”
Living with my unseen illnesses everyday is just a fact of life. I don’t feel bitter or unlucky. All I wish for is that the world would see us and accept us. We are here on this planet and we deserve a voice and consideration. My wish is to stop negative associations with unseen illness, to break down the separation between mental and physical illness, to allow people the freedom to speak of their illnesses in social and work settings without the fear of stigma and unfair treatment.
My unseen world is not unseen because of shame or fear. It is unseen because many choose not to see it. It is unseen because people don’t listen and it is unseen because I gave up explaining. However now I am not giving up, I shall explain and speak up and I shall not hide the truth. This will not change things over night but it will be my change, my contribution. I am a warrioress and my fight has just begun.