Proving unseen illness in order to survive.

I have to open myself up again, for the powers that be.
I have to retell it, relive it all.
I have to prove my illnesses and disabilities, whilst fitting in the predetermined boxes – designed for some of us to slip through.
I have fallen through the lines, the pages, told “there is nothing we can do for people like you”.
“You’re too ill”.
Jumping through hoops, running up hills – against the torrential down pour of sociatal expectations.
All this is done whilst the 1%, the bourgeoisie, the privileged watch on, as they stuff their faces with our human rights.
The media uses us as scapegoats, for the ‘outraged’ to demonise us, with the misinformation they are brainwashed by – we, the ones at the “bottom”, we bring it on ourselves.
Illness is equated with laziness, disability is questioned as being unmotivated.
The seen, the unseen and no details in between.
My work is unpaid and thankless, the sick leading the sick.
I don’t want this feeling of being less than, for being unable to fit into an imaginary “type”, conjured up by able, privileged puppet masters, pulling strings, herding the “deserving” humans into their boxes, and the undeserving to their coffins.

Ableism and Fertility – When online support groups turn against the vulnerable

Last Friday I woke up in my usual state of anxiety and dissociation, having spent what seemed like a life time of nightmares that night – when I had finally focused my mind on the day ahead my heart felt heavy and my mind was attentive to the fact I am infertile due to many factors and can not receive fertility treatment or adopt. The root of my issue is that I suffer from polycystic ovarian syndrome (PCOS), which developed in my early twenties after battling with anorexia and bulimia chronically for 8 years resulting in hospital treatment, ignoring my diagnosis due to embarrassment – as it made me feel a lack of control over my body my condition worsened. Having battled (and still battling) disorder eating and withholding food this news made me feel “fat and lazy” especially upon reading the information available on my illness – the stigma associated with PCOS is shocking, the symptoms of high testosterone in my body made me feel embarrassed as I started to grow unwanted hair – my self esteem was already in tatters so this was the last straw. Due to ignoring this diagnosis I developed type 2 diabetes just before I turned 30 and then my life as a woman trying to conceive changed forever.

Whilst feeling severely depressed and alone at the end of last week,  I turned (like many people) to a support group on Facebook called PCOS Tribe UK which having been a member for a while even though I had never posted, seemed a great place to find some support, so whilst shaking with adrenaline and seeing lights flickering over my eyes I wrote a post:

 

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I understand this was a very vague post, but not knowing how or what to say this felt like a way to open the conversation up as I was feeling so unable in myself and struggling with communication. Within seconds I received a reply and was hopeful that it would lead to some support and empathy with people who were also experiencing these difficult things. At first all seemed good I received this:

(For the privacy of these women I have made their identities unknown – as this is a private group and I would not wish their personal medical circumstances to be displayed without their consent.)

 

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Upon receiving this initial comment I felt a sense of relief that a dialogue had opened up with someone on this subject, also very much appreciating the:

“but maybe your circumstances are different than mine”

This felt like my opportunity to explain my situation further. Before I could even contemplate what to write the sound of notifications rang in my ears as my phone received new replies and comments on my post. Quickly my relief turned into more anxiety and my mind started to fog, the lights got brighter and my body and mind were sending me clear signals that I was under attack, so the defences went up.

 

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The first reply here is patronising and assumes they know my circumstances before I have even had a chance to explain and as I am sure you can read, her sweeping of my differing circumstances under the rug is in fact very silencing. Assuming we have been through the same thing is also a very big mistake when discussing these issues – I appreciate what she was possibly trying to do, but it was misjudged, so whilst trying to find a way to eloquently reply, of course the other lady was still being very kind and empathetic, which made me continue:

 

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On another screen on my phone I was desperately trying to write a reply which stated the reasons to which personally conceiving a baby is just not in my future, wanting to explain why fertility treatment has been denied to me on the NHS and why adoption is impossible when you have sever psychiatric disorders and physical disabilities, but the notifications kept coming and my anxiety as well as impulse control was pushing at my temples, making me feel obsessive and compulsive with rapid thoughts misfiring, it was painful physically as well as emotionally overpowering.

 

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As you can see my response is short and frustrated, it may have come across rude, but I have not got the same social abilities as “neurotypical” people, so direct is how I communicate especially when under pressure. The women were of course still trying to be helpful and there is no doubt in my mind that they were offering this advice in kindness. However so much of this is misguided, privileged and ableist as well as factually incorrect. Women kept stating to me that the ONLY way you could be certain you were completely unable to conceive is if all your female reproductive organs had been removed? This of course is not at all correct as there are many reasons why a woman can not conceive from physical illnesses as well as socio-economic reasons. Also as a woman who can’t have children it is never helpful to have other women push their success and fertility down your throat when they have not afforded you the time and courtesy to explain exactly why your inability to have children is a fact.

 

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(the reason that my image and name is blanked out is because these were taken on the group (PCOS Tribe UK) owner’s phone/computer and were put up on her Facebook profile – which I saved as I was removed from the group before I got to screen shot everything, may I add this is the only one she blanked my name and picture from, all the rest disclosed who I was in a public setting disclosing my infertility and medical issues)

This particular screen shot and comment of me hurt and made me feel mocked and dismissed. Apparently it was only acceptable of me to take advice on trying to conceive, NOT acceptable however to seek help in accepting that I shall not get the chance to have children due to my health and circumstances. Is it so wrong to have tried everything in your capabilities to conceive and seek help but still be denied or unsuccessful and then seek help in the acceptance of this? The only reason I came to the group was to seek help from women who for whatever reason could not have children – never thinking that I would be shamed for seeking this. It felt like for this woman, me seeking acceptance and help with this was an attack on her or the “wrong” thing to do as a woman.

My responses were apparently not acceptable and deemed abusive. But it was acceptable to suggest to me that I ask a friend who may wish to have an abortion if she would carry her child fall term for me to adopt?

The bombardment continued:

 

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I was abrupt – yes! But rude – no, you can see I am trying to explain myself and my disabilities but it is going so fast. Still desperately writing my explanation on another screen hoping that when these women understand my position they will know I was not being rude. By now the tears have begun to fall and my mind is experiencing tunnel vision.

Then the lady who replied to me first – who was kind and empathetic posted a comment, unfortunately I wasn’t able to send my reply as the admin had stopped all comments, as you can see from the red alert. I wanted to thank this lady for her kindness. And was still trying to reply to her first comment and explain myself.:

 

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Desperately I said several times on peoples replies “I am neuro-divegent” or “I have neurological damage I can’t process information that quickly”, hoping this would alert admins to my situation, hoping for some assistance but unfortunately I got this final reply from an admin and then was removed from the group:

 

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The decision and action taken by the groups owner and admins, was so upsetting, in disbelief of my removal I started a new explanation and wanted to post it on the groups wall to explain myself in the hope admin would see their error of silencing a woman just seeking support who couldn’t keep up and explain themselves in time due to their neurodiversity and disabilities. The other issue which caused me great distress is the fact the admins saw me pleading in regards to my disabilities and my inability to process this information and communicate at the speed neuro-typical people do. That instead of making this group and support accessible to me they deemed me a trouble maker who had only come to this group to cause arguments? Which may I add is an odd conclusion to make so abruptly and without hearing me out – however as a person who suffers from mental illness I am used to this kind of stigma. So I screen shot the reply I was trying to write which is when Facebook told me I was not able to post in the group anymore (hence why it is faded):

 

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But this was never seen and that was it I was banished. Left crying and feeling even more alone – like a freak, a troublemaker. Seeking some help as I was feeling very vulnerable and out of control and as someone who can not leave the house most of the time – panic set in and the fear of having a psychotic episode which could lead me to hurt myself was terrifying. Whilst trying to focus I reached out to my FB friends, family and followers as they are such wonderful supportive allies and know my situation, I wrote this:

 

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As soon as this status went public I started to receive friend requests and message requests from several different women, naively I thought they were sending me these requests to support me after what had happened. Unfortunately I was mistaken, the owner of the group was the first and as soon as I accepted her friend request she commented on my status:

(As this is a public post and this woman “Jane Mann” wrote this on my public post on my public profile no ones identity has been blanked out.)

 

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As you can read “Jane Mann” still misses the point entirely and still thinks it is acceptable to treat me this way and wishes to silence me further, and does not accept any criticism of her group. As this is on my profile my friends, family and followers become very protective of me and help tell Jane to back off. I then block Jane.

More women sent me (and anyone who commented on my status) abuse and friend requests, after this one of my friends sends Jane a message telling her in no uncertain terms to leave me alone – I did not ask for this to be done (although very grateful) however I do not know what Jane Mann expected when she made herself public on my profile.

Then the messages begun – I did not accept most of the requests however I did with this lady:

 

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As you can read she is very angry with me and my situation. This woman thinks I should be able to disclose my disabilities up front with no issue and if not – then that is my fault, which is of course a very able privileged view point. Also stating that because I had not posted before that this meant I was suspicious? She also questions if this (wanting to conceive and raise children of my own) is actually something I truly want, because I didn’t just shut up and accept advice which was actually not relevant to me as I CAN NOT CONCEIVE, but was never given enough time to explain exactly why this is so! Also she suggests I am a liar because I said these women “attacked” me, but doesn’t understand that feeling attacked by a large number of women overwhelming me with information at an unrealistic speed for me to keep up with is also a valid description of being “attacked” they of course did not pounce on me literally they attacked me figuratively through their ableism and dismissing my disabilities. I felt attacked! This very angry woman also says “if you had posted correctly” then apparently I would have been helped, I was unaware that there was a correct way to post – if I had known I certainly would have not joined the group or posted as this is too restrictive for me and confusing. As stated before – that morning there was no way in which I was able to write a long post explaining every detail of my infertility, physical and mental illnesses, disabilities, neuro-diversity and circumstances, not only because I was unwell but also due to the unwanted stigma that my circumstances can cause. Also her focus is on the number of women, I said “about 15” – for me this included all responses however I may have counted some people twice due to certain people posting more than once, in the confusion this is very possible – a valid argument against me – no!

This got nastier and nastier as this woman messaged everyone who had commented on my status or liked it – harassing people all because of this situation. Then this woman took it upon herself to go to my non-profit /charity organisation FB page Art Saves Lives International (ASLI) and do this:

 

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(since this attack either the woman or Facebook have removed this review)

 

Not only was this a step too far and nothing to do with ASLI as I was never in the group PCOS Tribe UK representing ASLI – I was there as Charlotte Farhan. This went on and on and she disclosed my infertility and medical issues here on this page. Not my public profile which anyone can access – not my public art page on Facebook which is just me. No this woman attacked this page and gave a fake review of an organisation which she had never heard of, all because I was unable to explain my disabilities and circumstances in the PCOS Tribe UK group in a satisfactory and speedily manner in order to receive advice I did not ask for or need by ableist privileged women.

My friend and a member of the ASLI team received a threat of physical harm and her art page on Facebook was attacked by these women:

 

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I received more the next day:

 

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Then my husband was alerted to Jane Mann (the owner of PCOS Tribe UK) sharing my information on her private profile as well as allowing people to discriminate against me and a friend after my mental illnesses and disabilities had been confirmed, this was in an album on her profile named “Evidence” along with screen shots of me in the private group disclosing all my issues:

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Calling us mentally unstable – which myself and my friend who sent Jane Mann a message (no one else did) are, as we have sever mental illness, which we stated – ridiculing us is ableism.

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Calling me a psycho – ableism and stigmatising against my very real and debilitating psychiatric illness.

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Yes we do! We don’t get it due to the state of the mental health care in the UK on the NHS. This is an ableist slur and stating how it is sad we need help is stigmatising and discriminatory.

None of this needed to happen, this was avoidable and hopefully these women – especially the owner and admins will learn how they need to check their privilege, especially their able privilege as well as understanding that fertility is not only to do with your reproductive organs, that there are many women like me who are given a small window until they reach 35 (depending on their area) who if they do not fit the correct criteria are denied fertility treatment. For me due to my 5ft 11inch frame and difficulties getting down to an unrealistic BMI in under 2 years when my diabetes was so out of control due to my  pancreas shutting down – was just not possible. Then the women would say “well get a second opinion, see a fertility specialist, get fertility treatment”, which my husband and I can not afford as we are a one income household as I can not earn money due to my disabilities and we have very bad credit. As for adoption – well I do not meet the standards as my disabilities and mental illness would mean (by their assessment) that I could not adequately care for a child. I do not dispute this as I am unable to care for myself.

Due to these factors my goal now is acceptance and realising that life without children can be fulfilling and meaningful, at the time I realise grieving for what will never be is essential. My husband and I have already lost a pregnancy when i was 26 years old – just after our first scan.

There is no malice in this article just awareness and my experience being put forward, hoping that this will mean other women like me will not be silenced or shut out because they do not fit into the socially constructed ideal of being a woman and having children. I would like to thank the women who came forward to me from the group PCOS Tribe UK who offered me support and help even though they were scared of the group owner and admin removing them, there were 5 women but two wrote sensitive information which may disclose their identities so I chose not to put them here:

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*Revision – I would like to clarify that I do NOT deem all members of this group as ableist, privileged or patronising. I am only referring to the members I had experiences with which were ableist and privileged. I am certain that this group is full of wonderful women from all different perspectives and circumstances, my issue is only with the page owner, admins and the members who attacked me after being removed. I know most women who commented meant well and did not understand my situation due to my vague post. I have not written this article to detract from the “good work” this group does for other vulnerable women, but felt it essential to put my experience across and since doing so have received a lot of feedback from women within the group and out of the group who have experienced similar issues in regards to my experiences and who have also experienced ableism. I wish all these women the best and hope they have happy healthy lives (even the owner, admins and members who harassed me after being removed). I hold no hate in my heart – I only wish to highlight the issues women like me with disabilities and who are neuro-diverse experience – my voice is valid and I shall not be silenced. 

For anyone reading this who is still unaware or confused about ableism or able privilege then here are some helpful links:

What is Ableism? Five Things About Ableism You Should Know

15 Crazy Examples Of Insanely Ableist Language

Stop Ableism Inc. / Arrêter L’Ableism Inc.

10 Ways to Avoid Everyday Ableism

DISABLED WOMEN AND REPRODUCTIVE JUSTICE

Women and Girls with Disabilities

 

Thank you and if you have any comments of feedback please fill out this form:

Being Disabled in an Able Constructed World

Since opening my eyes to the injustices I face on a daily basis and deciding to speak out, stand up and create change, it has been a rude awakening with an upward struggle of epic proportions.

When you realise the discrimination which is faced by people like yourself, who have disabilities it is daunting to imagine ever overcoming the stigma. The world is slowly becoming more aware of the struggles many different people face with the accessibility to people’s lives through the internet allowing for us to see the most vulnerable amongst us as well as the most privileged. This revolution of information is empowering to certain minority groups and marginalised people, allowing us to have a voice and a platform to discuss things which have never truly been heard – on a mass scale.

There is still a massive issue with how people see disabilities and chronic illness, especially those which are “unseen”, such as mental illnesses, neurological conditions, autoimmune diseases, heart disease, diabetes, dementia, and even cancer, the list goes on…

The term invisible illness refers to any medical condition that is not outwardly visible to others, even healthcare professionals. An individual with a disability is a person who: Has a physical or mental impairment that substantially limits one or more major life activities; has a record of such an impairment; or is regarded as having such an impairment.

For those who do not know, I have been diagnosed and living with disabilities most of my life, they are all “invisible”, even if not to me.

Complex Post Traumatic Stress Disorder, Psychotic Depression, Borderline Personality Disorder, Agoraphobia, Generalised Anxiety Disorder, Obsessive Compulsive Disorder, Attention Deficit Disorder, Depersonalisation, Derealisation,  Body Dysmorphic Disorder, Autism, Diabetes, Chronic Erythema NodosumRheumatoid arthritisPolycystic ovary syndrome.

With such a long list of chronic illnesses and disabilities, I am considered complex and have as a consequence been treated as difficult or been left to fall through the cracks of the system, not fitting into a single box to receive medical care.

Due to this “able” world we live in – I can’t even access medical care as the NHS in England does not recognise my disabilities as housebound? Even though I have not been outside, alone, for over 9 years, and sometimes can’t leave my home even when assisted, meaning at this present time (as I have no way of getting to the doctors when they are open even if I was able to go out assisted) I have NO medical care whatsoever; my medication is up for review and because of my lack of access to the services, to get reviewed I am without any medication also.

Now tell me how a person like myself is to feel?

The strongest feelings which sore through me are that of being left to die, abandoned once again, rejected by the world, by society. Being considered “high functioning” is a joke when all this apparently translates to is that of knowing my rights and being aware of my own mistreatment; as it certainly does not mean I can “function”.

Friends and family often forget about these “invisible” disabilities, asking you to go places you can’t, or not making any effort in including you in plans as they assume there is no way for you to be accommodated. Being spoken about as if you were a child and unable to make your own choices on what is best for you. An enormous pet peeve of mine is being told:

“You seem fine”

“You seem better today”

“You seem so relaxed and calm”

Unfortunately these well meant sentiments are damaging, pushing us back down, or inwardly; left feeling even more misunderstood or under the microscope. Often the reality is you are NOT fine, relaxed or calm, it is just you have adapted your behaviour as best you can to not alienate yourself, or that the symptoms you have are internal and there is no way anyone would ever “see” them, however this does not mean they are not there. As for “you seem better today”, well this one is by far the most stigmatising and leads to the most misunderstandings.

So take note able people – yes, we have some good minutes, hours, days, weeks and some even have years, this does not mean we are “cured” or that we are “better”, it just means like everyone else we fluctuate in moods, hormones; and that life can treat us well or bad which can alleviate or compound our issues. This need of yours to tell us we are “looking better” may be well meaning but it is truly just a way for your privilege to further separate us, it is as though you felt happier that our disabilities are quiet and not present to you at that moment, making you assume you can tell us how we feel or what you hope us to feel. You do not do this because you wish to be unkind, in fact the motivation seems to be the opposite, however the affect these simple words jumbled into a sentences causes, is unimaginable to those who have not experienced this existence.

In order to “cope” or seem like I am “coping” sedation with drugs, such as painkillers or cannabis, allow me to shut down most of my thoughts and concentrate on being present with my friends and family for short periods of time which means being on a unrealistic high around most people, confusing the situation more, as you are never truly yourself. Many people like myself take drugs for pain relief or some kind of mind altering substance in order to “function” as best they can in company. Through societal pressures to conform, we do this more for you; the able ones. Many of us learn early on how we are received when we are “out there” with our disabilities on show – as much as you can when they are unseen. After being told we are attention seekers, drama queens, liabilities, hand-fulls, trouble, a worry, or after just losing people as they up and leave because you are “too hard work”; this is when the survival skills kick in, conformity becomes your best defence, until you are unable to maintain the facade and become the reclusive “weirdo” society deemed you to be all along.

There are so many things to discuss with regards to being in an able dominated world, with everyone’s story being different. These are my musings on the subject at this present time, with the hope to add more to this discussion. Since being rejected and my civil liberties being taken from me I have been awoken, my only chance to survive is to change this, is to stand up and scream at the top of my lungs;

“I will not go silently, you can’t erase me, I have rights and I shall be heard”

For all those who call me: “a victim who wears her disabilities as a badge of honour”  you seem to be confused?

The way to survive after being a victim, marginalised, discriminated against and continuously pushed down is to play to your strengths and extend your hand to those who can not even do this, there is no shame in having been a victim or even if you are right now. Victim is NOT a dirty word! Chances are if you are a “victim” it means you have survived – you have faced something which unless experienced by others they will not understand, all experiences are unique and can be hard to understand even when you have the same disabilities – however checking your able privilege is not difficult it just means you must place your ego to one side and accept another humans experience.

Even though my fight may not always be as strong each day, as some days feeling defeated is all that can be felt, just breathing is too much to bear. The commitment inside me to this is my purpose for existing. Not being able to have children, with no blood family; this is my legacy, my nurturing, me giving of myself as selflessly as possible. This is my art, my activism, this is my life and not a “trend” or “fad” for you to disagree with.


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Being a Professional with Mental Illness: Misconceptions, Stigma and Facing Prejudice

Being a Professional with Mental Illness:

Misconceptions, Stigma and Facing Prejudice

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I have been working since the age of 14 and have done numerous jobs in my 31 years. I started off as a home help care assistant for the elderly in their own homes (even though I was under-age) and continued to work on and off in this position, working my way through training and in various care companies. I have also worked for many years as a waitress, barmaid and as a shop assistant throughout my teens and twenties. I have worked many 12 hour shifts and 7 day weeks I am not shy of hard work to say the least.

However due to my mental illnesses and traumatic adolescence and destructive twenties I have also been fired, made redundant, walked out and been pushed out due to be a whistle blower in a care home as I witnessed elderly abuse and reported it. Most of these jobs were lost or taken from me due to my mental illness. From being fired due to being signed off for mental illness to being targeted with prejudice and hate in the work place by an employer who took my mental health issues and broadcast them to other members of staff and told these members to be careful around me and not to trust me with knives and I was bullied and taunted due to this.

By the time I was 27 I had experienced a re-lapse after coming face to face with my rapist in the city I live in, whilst trying to post a letter which FYI for an agoraphobic such as myself was a massive challenge even though the post box was just outside my front door, this sent me into a spiralling decent and detachment set in, I am still suffering today with my recovery. At this time I was also a full time student at Portsmouth University, but due to this and my ability to go to classes deteriorating I was told by The University of Portsmouth I was to ill to study and had to leave my course, which as you can imagine was an enormous blow.

Now I was so unwell I cold not go outside alone or even at all most days (this is still the case) so what options did I have? I could stay in and waist away my mind due to the fact I had no medical support, financial support or the ability to work. So at first I just stopped, I was defeated and I felt as if I was sinking fast and was scared for my marriage and my life.

The thing is I may have mental illness, certain neurological damage due to trauma, a chemical in-balance and emotion regulation problems but this does not mean I was or am useless. I was just left, with nothing… As a survivor and someone who has been through so much I am very able in many things. The confusion in how “we” the mentally ill can work is a big issue and needs to be addressed under the Equal Opportunities Act and then further for our world to observe “us” as not criminal, incapable, useless, unintelligent, unreliable or some kind of contagious disease ridden liability.

However a NEW way of looking at “work” and “jobs” is needed for all of us to succeeded or provide for our family and sustain our lives. The format of the 9am – 5pm job is not suitable for everyone, nor is the insistence of office work. Already many of us work differing hours over a 24 hour period, with shift work and certain industries needing specific hours outside of the “working day”, as well as more people working from home and starting their own businesses. But are all opportunities equal and do people with disabilities get the same treatment as those without? The answer is simple, NO!

Equality Act 2010

The Equality Act came into force in October 2010, providing a modern, single legal framework with clear, streamlined law to tackle disadvantage and discrimination more effectively.

It is discrimination to treat a disabled person unfavourably because of something connected with their disability.  This type of discrimination is unlawful where the employer knows, or could reasonably be expected to know, that the person has a disability.

Definition of a disability

Under the Equality Act 2010, the definition of a disability is a physical or mental impairment that has a substantial and long-term negative effect on someone’s ability to do normal daily activities.

  • Substantial is more than minor or trivial.  For example, it takes much longer than it usually would to complete a daily task like getting dressed.
  • Long-term means 12 months or more. For example, a breathing condition that develops as a result of a lung infection.

Reasonable adjustments

Equality law recognises that bringing about equality for disabled people may mean changing the way employment is structured, the removal of physical barriers and/or providing extra support for a disabled worker.  This is the duty to make reasonable adjustments.

The aim of the duty is to make sure that, as far as is reasonable, a disabled worker has the same access to everything that is involved in doing and keeping a job as a non-disabled person.

Workplace adjustments

Workplace adjustments can be temporary or made on a permanent basis.

Examples of adjustments to working arrangements include:

  • allowing a phased return to work;
  • changing individual’s working hours;
  • providing help with transport to and from work;
  • arranging home working, providing a safe environment can be maintained;
  • allowing an employee to be absent from work for rehabilitation treatment.

Examples of adjustments to premises include:

  • moving tasks to more accessible areas;
  • making alterations to premises.

Examples of adjustments to a job include:

  • providing new or modifying existing equipment and tools;
  • modifying work furniture;
  • providing additional training;
  • modifying instructions or reference manuals;
  • modifying work patterns and management systems;
  • arranging telephone conferences to reduce travel;
  • providing a buddy or mentor;
  • providing supervision;
  • reallocating work within the employee’s team;
  • providing alternative work.

( All information taken from the Equality and Human Rights Commission http://www.equalityhumanrights.com/)

So what is really happening with this issue? (I shall share statistics on mental illness as this is the disability I have)

The most recent figures available show that only around 27% of working age adults in England with a mental illness are in employment.

The rate of employment for people with a mental illness is currently used by the government as one way of measuring people’s quality of life.

For those with mental health problems, being employed can be an important step to recovery, improving self-esteem and confidence and reducing psychological distress.

Conversely, unemployment increases the risk of developing mental health problems, and is associated with increased rates of depression and suicide.

The 27% of working age adults in England with a mental illness in employment compares with around 70% of the working age population as a whole being economically active.

We know that people with a mental illness are more likely to become unemployed, and research has suggested that less than 40% of employers would consider employing someone with a mental health problem

( From The Mental Health Foundation – http://www.mentalhealth.org.uk/ )

Mental Health Foundation

(If you would like to look further at Equality in employment in general, with regards to race, class, disability and gender please follow this link: Equality group inequalities in education, employment and earnings)

So what is it I want to convey to you, you may be asking yourself. My message is this: due to discrimination I have had to fight for rights in employment and education, I have almost completed my honours degree in Psychology and Philosophy at The Open University, who have helped me have the same chances as other students by providing me extra support. I also did not give up, deciding to follow my passions after the defeat I faced. Therefore I became what I always wanted to be, an artist which I have been very successful in since 2010 and my career just keeps getting bigger and better. When I speak of success I do not mean MONEY, I mean that I use my time to create and comment on my world and the world around me through art. With a massive following of over 40,000 people from all over the world, solo and group exhibitions, being a published illustrator, selling art, creating art for charity and campaigns and mentoring fellow artists, this to me is success. But believe me I have so much more to do!

As well as being an artist I am also the managing director of Art Saves Lives International and the co-founder of this amazing non-profit charitable organisation. I am the editor and chief of our on-line art publication ASLI Magazine and I am in charge of marketing, social media and campaigns. I have my own team and volunteers as well as our following of 5,000 supporters from around the world which grows everyday.

This is all done from my home, with my own suitable hours 10am – 6pm then 11pm till 1am with days off or half days off when I need, with none of this set in stone I can also be flexible with hospital appointments, seeing therapists and doing exposure work for my agoraphobia.

Things I can do to make my work environment easier:

  • To be e able to have no noise is important as I have
  • Being able to exercise whenever I need (for my diabetes, PCOS and arthritis)
  • I can eat alone, due to my illness I do not eat in-front of strangers for fear of weakness, judgement and germs
  • I get to start my day once my medication has worn off
  • I get to relax before work for an hour in my own environment with no pressure, this helps my anxiety as my anxiety is worse in the morning due to night terrors and hormonal issues
  • I do not have to deal with anyone I do not wish to which helps me focus on my work with no social anxiety
  • I get to take time out if I am having a particularly bad day without the “rules” and “disciplinary” action which I would ensue in most jobs, I always make up my hours and work so this is never a problem.
  • I get to structure my organisation with all of this in mind, so that anyone who works for me or ASLI is treated with these same equal rights

The things which make my life harder are made even harder by people who do not understand that I work very hard, non-profit and with my disabilities. I do not require sympathy, special treatment or exceptions, but what I do need is acceptance and for people to question their thoughts on these matters and remember hard work and valuable work do not equate to highly paid jobs or someone’s worth in general. Aligning these ideas with the other is in many ways one of our worst enemies on this planet.

So next time you see my work or me working or someone like myself please remember what you have read here, remember that I am just as valuable, hard-working and equal to you. This is not a hobby, this is my life!

When obstacles are put in your way in life you can sit there and give up and except your own defeat or you can challenge these obstacles and climb them with great force and determination, because YOU MUST REMEMBER THE ONLY WAY TO CHANGE THIS IS TO FIGHT IT! We must not be passive and except what the privileged power keepers of the world “give us”, we must not turn on the less fortunate, asylum seekers, unskilled, young, old or disabled! Instead we must aid each other within our communities to better help one another survive, but better still strive.

Thank you for your time…

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