Our Journey so Far – Me and my Psychiatric Assistance Dog

 

This is our journey so far…

Amadeus is a 13 month old standard poodle who is my psychiatric assistance dog and he is helping me gain some independence, access to the outside world, exercise and he also gives me things I can not get from human interaction. The conditions and illnesses which Amadeus aids me with are Complex Post Traumatic Stress Disorder, Agoraphobia, Generalised Anxiety Disorder, Borderline Personality Disorder, Psychotic Depression, Obsessive Compulsive Disorder, and Autistic Spectrum Disorder.

The requirement for me to have an assistance dog was in fact my last hope in having a more fulfilled life, in this able focused and neuro-typical world. Due to sever mental illnesses I have been unable to lead a “normal” life for over 11 years and some things have never been achievable.

When using the word “normal”, I use it in the sense that many things achieved by able people are taken for granted, such as being able to leave your home with ease everyday, crossing roads, being outside independently, going into shops and other establishments, speaking to strangers or service people, taking public transport, being able to drive, listening to music on headphones, meeting friends, going to hospital/doctor appointments…

the list goes on…

Very kindly a close friend of mine started a GoFundMe page and raised enough money for me to get Amadeus and all the things we needed to get the show on the road. People from all over the world donated and before I knew it, we were taking Amadeus home and the rest is history.

So in under a year I have achieved a great deal with Amadeus; starting with simply stepping outside my front door with him and closing the doors behind us whilst no one else was home – this was my first and most challenging of exercises.

Then we walked up the road and started with the closest cul-de-sac, completing this for up to two weeks at a time, then moving onto the next. Eventually mastering  three and staying in this comfort zone until I was ready to go past a busy pub and cross a small road by a large cul-de-sac. By this point I genuinely was astonished by my progress and felt a sense of freedom which would make me promise myself to never let go or go back – a lot of pressure but I have no “happy” medium abilities, it is black and white or nothing.

After this achievement my sights were set on going further up our road to a small green in front of an old Victorian prison, knowing this would be ideal for Amadeus to do his business and for me to be near some kind of nature – with trees and grass (even though it is next to a main road and very busy roundabout). This feat was very challenging, managing to do this once a week and slowly progressing to be able to do it more regularly over several weeks, before committing this as the place we would walk everyday.

By this point Amadeus was getting to be almost one and a feeling of rebirth flowed through my veins. So one day impulsively I decided to go the other way from my front gate, up the road and over a busy bridge to the cemetery behind my house, as this was something I could do without crossing any main roads  – plus it would give me an abundance of nature, things to look at and a longer walk for Amadeus.

We did it!

However this was impulsively done which was me jumping up my ladder and not safely stepping up one rung at a time, which is a trait due to my Borderline Personality Disorder (BPD). This meant I was wiped out for almost two weeks due to the exhaustion of doing something so outside of my comfort zone, which of course made me have sever anxiety symptoms – even though at the time it was enjoyable, but when you get the same adrenaline from walking up the road to a cemetery as someone bungy jumping or sky diving – it can be a really surreal feeling.

My next challenge is crossing a main road in front of my house which luckily has a pedestrian crossing and then walking straight down small residential roads to a beautiful pond and recreational field. My plan is to try and achieve this, this summer, which will be my greatest achievement so far. Amadeus will be able to go off lead in the field, we can walk around the pond, watch the wildlife, sit and read or listen to music; it is something I dream about constantly.

Even though this has changed my life, there are still days I can not go out, there are days when being outside is like being assaulted by every piece of sensory information at once, leaving me unable to process details and all I can do is rest and recover.

So if you have never thought of how privileged you are to leave your home in a carefree manner and when interacting with the outside world and its tasks it is no big deal to you; then I challenge you to think of what your life would be like if you were unable to do these things?

 


As a small art project I documented my journey so far with Amadeus and distorted the images to show the different sensory issues I encounter when outside. This was challenging as simply taking the photos by busy roads was disorientating, however with Amadeus keeping me grounded and helping me feel present and real I was able to do a lot more than I thought I would. There is a slide show, all images underneath and some videos.

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Ableism and Fertility – When online support groups turn against the vulnerable

Last Friday I woke up in my usual state of anxiety and dissociation, having spent what seemed like a life time of nightmares that night – when I had finally focused my mind on the day ahead my heart felt heavy and my mind was attentive to the fact I am infertile due to many factors and can not receive fertility treatment or adopt. The root of my issue is that I suffer from polycystic ovarian syndrome (PCOS), which developed in my early twenties after battling with anorexia and bulimia chronically for 8 years resulting in hospital treatment, ignoring my diagnosis due to embarrassment – as it made me feel a lack of control over my body my condition worsened. Having battled (and still battling) disorder eating and withholding food this news made me feel “fat and lazy” especially upon reading the information available on my illness – the stigma associated with PCOS is shocking, the symptoms of high testosterone in my body made me feel embarrassed as I started to grow unwanted hair – my self esteem was already in tatters so this was the last straw. Due to ignoring this diagnosis I developed type 2 diabetes just before I turned 30 and then my life as a woman trying to conceive changed forever.

Whilst feeling severely depressed and alone at the end of last week,  I turned (like many people) to a support group on Facebook called PCOS Tribe UK which having been a member for a while even though I had never posted, seemed a great place to find some support, so whilst shaking with adrenaline and seeing lights flickering over my eyes I wrote a post:

 

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I understand this was a very vague post, but not knowing how or what to say this felt like a way to open the conversation up as I was feeling so unable in myself and struggling with communication. Within seconds I received a reply and was hopeful that it would lead to some support and empathy with people who were also experiencing these difficult things. At first all seemed good I received this:

(For the privacy of these women I have made their identities unknown – as this is a private group and I would not wish their personal medical circumstances to be displayed without their consent.)

 

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Upon receiving this initial comment I felt a sense of relief that a dialogue had opened up with someone on this subject, also very much appreciating the:

“but maybe your circumstances are different than mine”

This felt like my opportunity to explain my situation further. Before I could even contemplate what to write the sound of notifications rang in my ears as my phone received new replies and comments on my post. Quickly my relief turned into more anxiety and my mind started to fog, the lights got brighter and my body and mind were sending me clear signals that I was under attack, so the defences went up.

 

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The first reply here is patronising and assumes they know my circumstances before I have even had a chance to explain and as I am sure you can read, her sweeping of my differing circumstances under the rug is in fact very silencing. Assuming we have been through the same thing is also a very big mistake when discussing these issues – I appreciate what she was possibly trying to do, but it was misjudged, so whilst trying to find a way to eloquently reply, of course the other lady was still being very kind and empathetic, which made me continue:

 

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On another screen on my phone I was desperately trying to write a reply which stated the reasons to which personally conceiving a baby is just not in my future, wanting to explain why fertility treatment has been denied to me on the NHS and why adoption is impossible when you have sever psychiatric disorders and physical disabilities, but the notifications kept coming and my anxiety as well as impulse control was pushing at my temples, making me feel obsessive and compulsive with rapid thoughts misfiring, it was painful physically as well as emotionally overpowering.

 

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As you can see my response is short and frustrated, it may have come across rude, but I have not got the same social abilities as “neurotypical” people, so direct is how I communicate especially when under pressure. The women were of course still trying to be helpful and there is no doubt in my mind that they were offering this advice in kindness. However so much of this is misguided, privileged and ableist as well as factually incorrect. Women kept stating to me that the ONLY way you could be certain you were completely unable to conceive is if all your female reproductive organs had been removed? This of course is not at all correct as there are many reasons why a woman can not conceive from physical illnesses as well as socio-economic reasons. Also as a woman who can’t have children it is never helpful to have other women push their success and fertility down your throat when they have not afforded you the time and courtesy to explain exactly why your inability to have children is a fact.

 

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(the reason that my image and name is blanked out is because these were taken on the group (PCOS Tribe UK) owner’s phone/computer and were put up on her Facebook profile – which I saved as I was removed from the group before I got to screen shot everything, may I add this is the only one she blanked my name and picture from, all the rest disclosed who I was in a public setting disclosing my infertility and medical issues)

This particular screen shot and comment of me hurt and made me feel mocked and dismissed. Apparently it was only acceptable of me to take advice on trying to conceive, NOT acceptable however to seek help in accepting that I shall not get the chance to have children due to my health and circumstances. Is it so wrong to have tried everything in your capabilities to conceive and seek help but still be denied or unsuccessful and then seek help in the acceptance of this? The only reason I came to the group was to seek help from women who for whatever reason could not have children – never thinking that I would be shamed for seeking this. It felt like for this woman, me seeking acceptance and help with this was an attack on her or the “wrong” thing to do as a woman.

My responses were apparently not acceptable and deemed abusive. But it was acceptable to suggest to me that I ask a friend who may wish to have an abortion if she would carry her child fall term for me to adopt?

The bombardment continued:

 

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I was abrupt – yes! But rude – no, you can see I am trying to explain myself and my disabilities but it is going so fast. Still desperately writing my explanation on another screen hoping that when these women understand my position they will know I was not being rude. By now the tears have begun to fall and my mind is experiencing tunnel vision.

Then the lady who replied to me first – who was kind and empathetic posted a comment, unfortunately I wasn’t able to send my reply as the admin had stopped all comments, as you can see from the red alert. I wanted to thank this lady for her kindness. And was still trying to reply to her first comment and explain myself.:

 

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Desperately I said several times on peoples replies “I am neuro-divegent” or “I have neurological damage I can’t process information that quickly”, hoping this would alert admins to my situation, hoping for some assistance but unfortunately I got this final reply from an admin and then was removed from the group:

 

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The decision and action taken by the groups owner and admins, was so upsetting, in disbelief of my removal I started a new explanation and wanted to post it on the groups wall to explain myself in the hope admin would see their error of silencing a woman just seeking support who couldn’t keep up and explain themselves in time due to their neurodiversity and disabilities. The other issue which caused me great distress is the fact the admins saw me pleading in regards to my disabilities and my inability to process this information and communicate at the speed neuro-typical people do. That instead of making this group and support accessible to me they deemed me a trouble maker who had only come to this group to cause arguments? Which may I add is an odd conclusion to make so abruptly and without hearing me out – however as a person who suffers from mental illness I am used to this kind of stigma. So I screen shot the reply I was trying to write which is when Facebook told me I was not able to post in the group anymore (hence why it is faded):

 

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But this was never seen and that was it I was banished. Left crying and feeling even more alone – like a freak, a troublemaker. Seeking some help as I was feeling very vulnerable and out of control and as someone who can not leave the house most of the time – panic set in and the fear of having a psychotic episode which could lead me to hurt myself was terrifying. Whilst trying to focus I reached out to my FB friends, family and followers as they are such wonderful supportive allies and know my situation, I wrote this:

 

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As soon as this status went public I started to receive friend requests and message requests from several different women, naively I thought they were sending me these requests to support me after what had happened. Unfortunately I was mistaken, the owner of the group was the first and as soon as I accepted her friend request she commented on my status:

(As this is a public post and this woman “Jane Mann” wrote this on my public post on my public profile no ones identity has been blanked out.)

 

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As you can read “Jane Mann” still misses the point entirely and still thinks it is acceptable to treat me this way and wishes to silence me further, and does not accept any criticism of her group. As this is on my profile my friends, family and followers become very protective of me and help tell Jane to back off. I then block Jane.

More women sent me (and anyone who commented on my status) abuse and friend requests, after this one of my friends sends Jane a message telling her in no uncertain terms to leave me alone – I did not ask for this to be done (although very grateful) however I do not know what Jane Mann expected when she made herself public on my profile.

Then the messages begun – I did not accept most of the requests however I did with this lady:

 

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As you can read she is very angry with me and my situation. This woman thinks I should be able to disclose my disabilities up front with no issue and if not – then that is my fault, which is of course a very able privileged view point. Also stating that because I had not posted before that this meant I was suspicious? She also questions if this (wanting to conceive and raise children of my own) is actually something I truly want, because I didn’t just shut up and accept advice which was actually not relevant to me as I CAN NOT CONCEIVE, but was never given enough time to explain exactly why this is so! Also she suggests I am a liar because I said these women “attacked” me, but doesn’t understand that feeling attacked by a large number of women overwhelming me with information at an unrealistic speed for me to keep up with is also a valid description of being “attacked” they of course did not pounce on me literally they attacked me figuratively through their ableism and dismissing my disabilities. I felt attacked! This very angry woman also says “if you had posted correctly” then apparently I would have been helped, I was unaware that there was a correct way to post – if I had known I certainly would have not joined the group or posted as this is too restrictive for me and confusing. As stated before – that morning there was no way in which I was able to write a long post explaining every detail of my infertility, physical and mental illnesses, disabilities, neuro-diversity and circumstances, not only because I was unwell but also due to the unwanted stigma that my circumstances can cause. Also her focus is on the number of women, I said “about 15” – for me this included all responses however I may have counted some people twice due to certain people posting more than once, in the confusion this is very possible – a valid argument against me – no!

This got nastier and nastier as this woman messaged everyone who had commented on my status or liked it – harassing people all because of this situation. Then this woman took it upon herself to go to my non-profit /charity organisation FB page Art Saves Lives International (ASLI) and do this:

 

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(since this attack either the woman or Facebook have removed this review)

 

Not only was this a step too far and nothing to do with ASLI as I was never in the group PCOS Tribe UK representing ASLI – I was there as Charlotte Farhan. This went on and on and she disclosed my infertility and medical issues here on this page. Not my public profile which anyone can access – not my public art page on Facebook which is just me. No this woman attacked this page and gave a fake review of an organisation which she had never heard of, all because I was unable to explain my disabilities and circumstances in the PCOS Tribe UK group in a satisfactory and speedily manner in order to receive advice I did not ask for or need by ableist privileged women.

My friend and a member of the ASLI team received a threat of physical harm and her art page on Facebook was attacked by these women:

 

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I received more the next day:

 

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Then my husband was alerted to Jane Mann (the owner of PCOS Tribe UK) sharing my information on her private profile as well as allowing people to discriminate against me and a friend after my mental illnesses and disabilities had been confirmed, this was in an album on her profile named “Evidence” along with screen shots of me in the private group disclosing all my issues:

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Calling us mentally unstable – which myself and my friend who sent Jane Mann a message (no one else did) are, as we have sever mental illness, which we stated – ridiculing us is ableism.

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Calling me a psycho – ableism and stigmatising against my very real and debilitating psychiatric illness.

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Yes we do! We don’t get it due to the state of the mental health care in the UK on the NHS. This is an ableist slur and stating how it is sad we need help is stigmatising and discriminatory.

None of this needed to happen, this was avoidable and hopefully these women – especially the owner and admins will learn how they need to check their privilege, especially their able privilege as well as understanding that fertility is not only to do with your reproductive organs, that there are many women like me who are given a small window until they reach 35 (depending on their area) who if they do not fit the correct criteria are denied fertility treatment. For me due to my 5ft 11inch frame and difficulties getting down to an unrealistic BMI in under 2 years when my diabetes was so out of control due to my  pancreas shutting down – was just not possible. Then the women would say “well get a second opinion, see a fertility specialist, get fertility treatment”, which my husband and I can not afford as we are a one income household as I can not earn money due to my disabilities and we have very bad credit. As for adoption – well I do not meet the standards as my disabilities and mental illness would mean (by their assessment) that I could not adequately care for a child. I do not dispute this as I am unable to care for myself.

Due to these factors my goal now is acceptance and realising that life without children can be fulfilling and meaningful, at the time I realise grieving for what will never be is essential. My husband and I have already lost a pregnancy when i was 26 years old – just after our first scan.

There is no malice in this article just awareness and my experience being put forward, hoping that this will mean other women like me will not be silenced or shut out because they do not fit into the socially constructed ideal of being a woman and having children. I would like to thank the women who came forward to me from the group PCOS Tribe UK who offered me support and help even though they were scared of the group owner and admin removing them, there were 5 women but two wrote sensitive information which may disclose their identities so I chose not to put them here:

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*Revision – I would like to clarify that I do NOT deem all members of this group as ableist, privileged or patronising. I am only referring to the members I had experiences with which were ableist and privileged. I am certain that this group is full of wonderful women from all different perspectives and circumstances, my issue is only with the page owner, admins and the members who attacked me after being removed. I know most women who commented meant well and did not understand my situation due to my vague post. I have not written this article to detract from the “good work” this group does for other vulnerable women, but felt it essential to put my experience across and since doing so have received a lot of feedback from women within the group and out of the group who have experienced similar issues in regards to my experiences and who have also experienced ableism. I wish all these women the best and hope they have happy healthy lives (even the owner, admins and members who harassed me after being removed). I hold no hate in my heart – I only wish to highlight the issues women like me with disabilities and who are neuro-diverse experience – my voice is valid and I shall not be silenced. 

For anyone reading this who is still unaware or confused about ableism or able privilege then here are some helpful links:

What is Ableism? Five Things About Ableism You Should Know

15 Crazy Examples Of Insanely Ableist Language

Stop Ableism Inc. / Arrêter L’Ableism Inc.

10 Ways to Avoid Everyday Ableism

DISABLED WOMEN AND REPRODUCTIVE JUSTICE

Women and Girls with Disabilities

 

Thank you and if you have any comments of feedback please fill out this form:

Everyone is Watching – Art and Poetry By Charlotte Farhan

Everyone is Watching - By Charlotte Farhan

Everyone is Watching – By Charlotte Farhan

With this unseen malady,
the world is set to a different frequency,
faces move past with only apathy,
when they can’t fit you into a box,
intelligent, irrational, focused, erratic…
you seem a paradox.

Knowing people question me,
life feels scrutinised,
under the microscope,
wishing to be disguised,
not made to walk this tightrope.

Being able to be free,
not continuously analysed,
a participant, not an absentee,
hearing my voice,
without having to be patronised,
without having to prove my disabilities,
they love to give you the third degree,
have I not proved my invincibility?

We the stigmatised,
are not your problem to fix,
not here to be tamed and civilised,
neither will I be cured by your crucifix ,
“God only gives us what we can handle”
is this a joke – a chance to poke,
superstition and dogma we must dismantle,
instead with these ideas they provoke.

Everyone is watching me,
no longer left alone to recover,
my life is not something you can disagree,
they want to rip it away – uncover,
these things you can’t see,
no one would want this,
so with this plea,
stop watching me.


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Where are my human rights? Mental illness in the NHS

Over 3 weeks ago I wrote an open letter to the NHS and the Adult Mental Health Services:  https://charlottefarhanartactivism.com/2016/09/06/open-letter-to-the-mental-health-services-england-nhs/ Charlotte Farhan - Open letter to NHS

Since this letter things started to look up, after tweeting my desperation and crisis live to the world and my followers, the NHS services in my area contacted me and so did the patient liaison services at my GP surgery.

However it has now become clear that my plea for help and my right to basic medical care was in fact interpreted as an invitation for further discrimination and stigmatisation from NHS staff, leaving me defeated, suicidal and so very ill. Ableism reared its ugly head, as did the neurotypical privilege of the service providers. Surprisingly after all I have been through – I was shocked, naive some may say, but when you are desperate – hope is all you have. My hope is almost non existent now.

The main issue seems to be a complete lack of understanding for complex mental illness and disabilities as well as a lack of empathy. I understand that these bureaucrats are not medical professionals, however if they do not have the knowledge – they can get it, and if they are un-empathetic – should they be put in these roles?

Another problematic situation was the abrupt stopping of access to my medication which happened which left me without medication for several months and no doctor at my practice seemed concerned that this had happened due to me not being able to attend a review which they set for my medication, so due to my lack of ability to attend (which they were well aware of) they just stopped it. Now there are not many meds I can take for my mental illnesses, anti-psychotics make me zombie like, mood stabilisers seem to make me physically sick, most anti-depressants do not work for me, however Citalopram is a drug which minimises my anxiety disorders (C-PTSD, Generalised Anxiety Disorder, OCD, Body Dysmorphic Disorder and Agoraphobia) I take the 40g dose which is the highest (when not in hospital) – it takes the intense feelings away, the feelings which cause me to be in constant fight or flight – a hyper vigilant mind, which feels like your entire body is trying to kill you and save you from imagined danger all at once. Even though it is not a miracle cure and does not make me more able, it allows me to exist in a calmer mind set, which is a life line when dealing with complex illnesses.

As you may be aware it is dangerous to stop medication abruptly as it can cause side effects and withdrawal symptoms. Personally my withdrawal was hell and life threatening, some are lucky enough to not even experience any issues, however there is no way of knowing.

The danger I was put in by the doctors stopping my medication access abruptly led to: suicidal thoughts and plans, anxiety, panic attacks, brain fog, concentration problems, insomnia, migraines, confusion, depression, dizziness, nausea, mood swings, fatigue and irritability. 

This then had a knock on effect to my other illnesses, being under so much stress led to my diabetes and PCOS symptoms to become worse, my borderline personality disorder became more intense and more dangerous for me, intensifying my suicidal desires and my inability to regulate emotions. Also I experienced psychosis – with delusions and hallucinations due to my psychotic depression.

The ridiculousness of this is once I started to complain on social media, the doctors were made to give me an emergency prescription of 30 days, but with no accommodations being made for me to access my GP and as this is not on a repeat prescription in exactly 15 days time I shall be in the same predicament and have to go through this ordeal again, which I fear I will not survive.

In my correspondence with the NHS several things were said to me which constitute as discrimination, ableism and some were just unhelpful in a stressful situation.

Some of the most frustrating things said to me:

“it is a shame your husband can not attend evening appointments”.

Well as far as I am aware just from all the people I know in this country, none of them can access evening appointments due to normal working hours, with only one evening being made open for late appointments, this is ridiculous and very unhelpful to me a disabled person – house bound, with only my husband as my access to the world outside.

“you say you are out of medication”

This may be semantics, however saying “you say” indicates a lack of belief, what would be wrong in saying, “you have no medication, we can help with this”, this was very triggering for me and my conditions as it made me feel unheard and disbelieved.

“There are other surgeries which may offer what you need”

This made me feel so angry and discriminated against. As no real effort has been made here for my disabilities. A ramp is put in place for wheelchair users, WHERE IS MY RAMP! If they are suggesting that some one like me is so difficult and must be put through the added stress of finding another GP surgery just because a GP can not message me via email or text when they are on their way to my house, so that I can answer the door to them, well this is disgusting! This is what we are talking about… Nothing more!

“This appointment could have been had by another patient needing a home visit”

Now this is called victim blaming as well as ableism. I made it very clear that my disabilities mean my communication skills are impaired so I can not answer the phone or make phone calls, I also stated that due to my disabilities I can not go outside alone, sometimes not at all, that a handful of people are safe enough for me to go outside with (all of whom work during surgery hours), and that I can not answer the front door if I have no idea who it is (giving me a time or texting when outside is how I can open the door). Saying that another patient could have had the appointment I so desperately need is so discriminatory against my mental illnesses and has put unnecessary stress onto me when already so unwell.

This is why it has taken me 3 weeks to write another article, as I feel defeated. My only motivation is that by fighting for myself I can fight for others, as so many people have messaged me in the last 3 weeks telling me how they are in similar situations, so holding on by a thread my mission is to create change. However when the next wave of withdrawal happens whether this fight is sustained is anyone’s guess. As there are times when I am not in control of myself. For now my fight is waning but still intact.

Here are my email correspondence with the NHS (this is done for full transparency):

NHS Correspondence

NHS Correspondence

NHS Correspondence

NHS Correspondence

NHS Correspondence

NHS Correspondence

NHS Correspondence

NHS Correspondence


NHS Correspondence


NHS Correspondence

NHS Correspondence


 

NHS Correspondence


NHS Correspondence

NHS Correspondence

NHS Correspondence


NHS Correspondence

NHS Correspondence

NHS Correspondence


For more information on Citalaopram please follow these links:

Mind: http://www.mind.org.uk/information-support/drugs-and-treatments/antidepressants-a-z/citalopram/

Head Meds: http://www.headmeds.org.uk/medications/10-citalopram/use_and_action

Mental Health Daily: http://mentalhealthdaily.com/2014/05/21/celexa-citalopram-withdrawal-symptoms-how-long-will-they-last/

Withdrawal symptoms:

  • Anxiety
  • Brain zaps: Most SSRIs can lead to a person experiencing “brain zaps” or electrical shock sensations upon withdrawal.
  • Concentration problems: a person may feel mentally slow and/or foggy when they stop the medication – this is likely due to changes in levels of neurotransmitters.
  • Confusion: Your cognitive functioning can become impaired to the point of experiencing general confusion. This confusion may be a result of memory retrieval problems, but could also just be confused thinking.
  • Crying spells: Some people report increased depression to the point of crying spells. Low serotonin can cause people to cry excessively.
  • Depression: This is a result of their brain no longer inhibiting the re-uptake of serotonin to the degree that occurred on the medication.
  • Dizziness: Feeling dizzy is one of the most common symptoms to experience during SSRI withdrawal.
  • Fatigue: It may be difficult to get out of bed in the morning or even make it through a work day. The tiredness and lethargy may be pretty severe.
  • Headaches: This is another classic symptom of SSRI withdrawal.
  • Insomnia
  • Irritability: This is because the brain no longer is receiving the calming effect of the drug and it can be difficult to regulate emotions.
  • Memory problems: It is common to experience memory problems to the point that you think you have lost your memory.
  • Mood swings:  They may persist for a long time, but will eventually subside.
  • Nausea: You may feel nauseated all day and in some cases, want to vomit.
  • Sleep changes: It is very likely that your sleep cycle will be affected when you withdraw from this drug.
  • Suicidal thoughts: It is very common to experience suicidal thoughts when discontinuing an antidepressant. Any SSRI that is withdrawn from is likely to lead a person to feeling suicidal.

If you have experienced anything similar with the NHS or you wish to help me and want to know how? Please fill in this form:


If you have an emergency due to your mental illness please be safe and contact Sane: http://www.sane.org.uk/what_we_do/support/

mental-illness-meme by charlotte farhan

Being Disabled in an Able Constructed World

Since opening my eyes to the injustices I face on a daily basis and deciding to speak out, stand up and create change, it has been a rude awakening with an upward struggle of epic proportions.

When you realise the discrimination which is faced by people like yourself, who have disabilities it is daunting to imagine ever overcoming the stigma. The world is slowly becoming more aware of the struggles many different people face with the accessibility to people’s lives through the internet allowing for us to see the most vulnerable amongst us as well as the most privileged. This revolution of information is empowering to certain minority groups and marginalised people, allowing us to have a voice and a platform to discuss things which have never truly been heard – on a mass scale.

There is still a massive issue with how people see disabilities and chronic illness, especially those which are “unseen”, such as mental illnesses, neurological conditions, autoimmune diseases, heart disease, diabetes, dementia, and even cancer, the list goes on…

The term invisible illness refers to any medical condition that is not outwardly visible to others, even healthcare professionals. An individual with a disability is a person who: Has a physical or mental impairment that substantially limits one or more major life activities; has a record of such an impairment; or is regarded as having such an impairment.

For those who do not know, I have been diagnosed and living with disabilities most of my life, they are all “invisible”, even if not to me.

Complex Post Traumatic Stress Disorder, Psychotic Depression, Borderline Personality Disorder, Agoraphobia, Generalised Anxiety Disorder, Obsessive Compulsive Disorder, Attention Deficit Disorder, Depersonalisation, Derealisation,  Body Dysmorphic Disorder, Autism, Diabetes, Chronic Erythema NodosumRheumatoid arthritisPolycystic ovary syndrome.

With such a long list of chronic illnesses and disabilities, I am considered complex and have as a consequence been treated as difficult or been left to fall through the cracks of the system, not fitting into a single box to receive medical care.

Due to this “able” world we live in – I can’t even access medical care as the NHS in England does not recognise my disabilities as housebound? Even though I have not been outside, alone, for over 9 years, and sometimes can’t leave my home even when assisted, meaning at this present time (as I have no way of getting to the doctors when they are open even if I was able to go out assisted) I have NO medical care whatsoever; my medication is up for review and because of my lack of access to the services, to get reviewed I am without any medication also.

Now tell me how a person like myself is to feel?

The strongest feelings which sore through me are that of being left to die, abandoned once again, rejected by the world, by society. Being considered “high functioning” is a joke when all this apparently translates to is that of knowing my rights and being aware of my own mistreatment; as it certainly does not mean I can “function”.

Friends and family often forget about these “invisible” disabilities, asking you to go places you can’t, or not making any effort in including you in plans as they assume there is no way for you to be accommodated. Being spoken about as if you were a child and unable to make your own choices on what is best for you. An enormous pet peeve of mine is being told:

“You seem fine”

“You seem better today”

“You seem so relaxed and calm”

Unfortunately these well meant sentiments are damaging, pushing us back down, or inwardly; left feeling even more misunderstood or under the microscope. Often the reality is you are NOT fine, relaxed or calm, it is just you have adapted your behaviour as best you can to not alienate yourself, or that the symptoms you have are internal and there is no way anyone would ever “see” them, however this does not mean they are not there. As for “you seem better today”, well this one is by far the most stigmatising and leads to the most misunderstandings.

So take note able people – yes, we have some good minutes, hours, days, weeks and some even have years, this does not mean we are “cured” or that we are “better”, it just means like everyone else we fluctuate in moods, hormones; and that life can treat us well or bad which can alleviate or compound our issues. This need of yours to tell us we are “looking better” may be well meaning but it is truly just a way for your privilege to further separate us, it is as though you felt happier that our disabilities are quiet and not present to you at that moment, making you assume you can tell us how we feel or what you hope us to feel. You do not do this because you wish to be unkind, in fact the motivation seems to be the opposite, however the affect these simple words jumbled into a sentences causes, is unimaginable to those who have not experienced this existence.

In order to “cope” or seem like I am “coping” sedation with drugs, such as painkillers or cannabis, allow me to shut down most of my thoughts and concentrate on being present with my friends and family for short periods of time which means being on a unrealistic high around most people, confusing the situation more, as you are never truly yourself. Many people like myself take drugs for pain relief or some kind of mind altering substance in order to “function” as best they can in company. Through societal pressures to conform, we do this more for you; the able ones. Many of us learn early on how we are received when we are “out there” with our disabilities on show – as much as you can when they are unseen. After being told we are attention seekers, drama queens, liabilities, hand-fulls, trouble, a worry, or after just losing people as they up and leave because you are “too hard work”; this is when the survival skills kick in, conformity becomes your best defence, until you are unable to maintain the facade and become the reclusive “weirdo” society deemed you to be all along.

There are so many things to discuss with regards to being in an able dominated world, with everyone’s story being different. These are my musings on the subject at this present time, with the hope to add more to this discussion. Since being rejected and my civil liberties being taken from me I have been awoken, my only chance to survive is to change this, is to stand up and scream at the top of my lungs;

“I will not go silently, you can’t erase me, I have rights and I shall be heard”

For all those who call me: “a victim who wears her disabilities as a badge of honour”  you seem to be confused?

The way to survive after being a victim, marginalised, discriminated against and continuously pushed down is to play to your strengths and extend your hand to those who can not even do this, there is no shame in having been a victim or even if you are right now. Victim is NOT a dirty word! Chances are if you are a “victim” it means you have survived – you have faced something which unless experienced by others they will not understand, all experiences are unique and can be hard to understand even when you have the same disabilities – however checking your able privilege is not difficult it just means you must place your ego to one side and accept another humans experience.

Even though my fight may not always be as strong each day, as some days feeling defeated is all that can be felt, just breathing is too much to bear. The commitment inside me to this is my purpose for existing. Not being able to have children, with no blood family; this is my legacy, my nurturing, me giving of myself as selflessly as possible. This is my art, my activism, this is my life and not a “trend” or “fad” for you to disagree with.


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Ableism: when educating people on their own struggles is harmful

Ableism
This is not my usual post and contemplated not writing this at all, however the urge kept coming back and the reason for this was simple, I had been silenced and needed to be heard. Before I begin this is in no way a post to shame anyone, it is to highlight an issue which many do not take seriously as they are privileged in not experiencing the persecutions and discrimination that people such as myself have to endure most days.
There is this woman, called Laura who has a popular blog called Skinny And Single and she often writes day to day stuff. Her tag line is already problematic as it states:
 “Single and Over 40 and Not Suicidal About It”
Recently when reading her posts, which has been over the last few month I noticed her use of certain language, which was stigmatising towards mentally ill people and people with disabilities – as well as finding her writing exceptionally privileged, with little care for who she judges, belittles or creates further stigma for. Under the disguise of humour, with the attitude of “well it’s all OK if I didn’t really mean it” kind-a-thing. With a get out clause which seems to be a very “in” thing to do at the moment, which is to state, “I am just being honest or real” as if this were a license to cause harm wherever one wishes.
ableist bingo
After her most recent post “Seven People That Need Punched In The Crotch ” I decided to un-follow her blog and social media sites as I just didn’t like her style, judgement and writing, having tried to see the funny side but failing as her use of what she calls “satire” is not my understanding of it. Being French/British – in both my countries we relish in satirical humour which is a great way to poke fun at current affairs, it is by definition:
The use of humour, irony, exaggeration, or ridicule to expose and criticize people’s stupidity or vices, particularly in the context of contemporarypolitics and other topicalissues.
In England and France we use this humour to expose and ridicule the elites, those in power and the upper classes, and now celebrities; it is rarely used against people from minority groups. This is why when I saw her blog posts in our online community of #LinkYourLife I gave them a read before coming to these conclusions. This is what led me to contact her with my feedback as a mentally ill person, in a calm way – to maybe highlight something which she may not have realised was even in her writing.
I tweeted her and told her in a playful way:
“I am glad I am in the UK so you can’t punch me in the crotch”
thinking this would be a nice way to address the issue, trying to be humorous was my attempt at connecting on a level (especially on twitter with so few characters). The tweet didn’t really get me anywhere so thought to myself:
“just be direct Charlotte”
tweeting her again and telling her that she had used stigmatising language and I referenced her latest blog post and the last sentence; which needed addressing, where she stated:
“I am not a crack pot either. I am a regular woman,”
which was in reference to not being a feminist.
You can disagree with feminism all you wish, but the use of the word crackpot just left me feeling stigmatised, for I have been referred to as crackpot, and have been pushed down by so many with these kinds of words – ringing in my ears.
Ableism
In response to this she became very defensive and told me outright that this was not the case, she even had a friend join in who writes a blog on her issues with bipolar disorder, (someone who I thought would at least let me speak), but they both decided to educate me on how this language was not stigmatisation and that in fact, Laura does a lot to help people with mental illness.
Not me – but others.
This was very silencing for me – an actual mentally ill person, who has sever mental illness and has had this since being a child, I know first hand what discrimination against the mentally ill can feel like, having to fight for almost every right I have, and still my civil rights are very limited, with no earning privileges or work opportunities, no medical health care due to austerity in the UK and there not being the services, having to fight my way through education to get the same chance as other students, and these are just a few examples.
Laura, decided to bombard me with questions and was pressuring me to tell her exactly what it was she was doing wrong, the tweets felt like someone knocking loudly on my skull, I couldn’t think and twitter wanted me to write it to her in so few characters, the pressure mounted so high that I experienced sensory overload and had to lay down, before leaving my laptop, I tweeted her to say this had happened and that I would do my best to reply to her as quickly as possible.
Feeling so defeated by this I left it for a week before trying to respond to Laura with my rebuttal to her questions and stance. The following Friday the same post of hers came up in my news feed and reminded me that I had not replied to her and needed to. I tweeted her and explained my position.
She tweeted back:
“I don’t care and I feel sorry for you”
Wow! This hurt so much, I could feel the tears rising in my eyes and my throat got tight, my thoughts started racing and the anxiety hit me like a ton of bricks. Laura then decided to tell me that I did not know what ableism was?
She even sent me a handy Wikipedia link, this was devastating, again it was like she was reaching inside my throat and ripping out my vocal cords as she took my disabilities and used them to prop herself up and exert her privilege over me even more.
This woman does not know me, or what I suffer from, which are both physical and mental disabilities, as I have mobility issues as well as my mental health and neurological issues. This may have been an attempt to make me look stupid, as she had clearly just googled “ableism” and thought in this quick search that she knew all there was to know about the community of people including myself – fighting everyday to have our rights taken seriously and for the abusive language which has kept us as an under class in society for hundreds of years – to stop, making us untrustworthy, unemployable and so many more things which of course are not true and just discrimination.
including-kids-and-teens-with-mental-illness-in-the-church-and-community-7-638
Ableism was first a movement for people who were discriminated against by able-people, this was just a “physical” thing at first, however as the community grew and became more aware of the discrimination people with mental illness and neurological conditions faced, the movement merged with what was known as sanism, so that there was no difference made between physical and mental as we try and educate people that mental/neurological, is also physical as it causes so many physical problems for its sufferers. With more and more research being done within these fields, we now know that physical differences can be seen in peoples brains who have mental illness as well as certain conditions such as PTSD (which I have) can cause physical pain, and is considered neurological damage.
This is why when she tried to educate me on my own discrimination it felt so isolating and cruel. There is no hate for Laura and her blog, all I wish she could have done is taken a moment to listen to me, understand where I was coming from and possibly check her own privilege over the matter.
Never would I tell someone to not post something, but rather to think before posting, and if you don’t care about upsetting the cause then own this too. Don’t pretend to be a champion for us when you stigmatise us with your own language.
All I had to do was un-follow and move on, however before moving on, my voice had to be heard and my cause had to be fought.
The last comments before she blocked me were that she felt sorry for me. Another terrible thing to say to someone with disabilities, in no way do I need anyone to feel sorry for me, especially when it is said with disdain.
All I and others want in our community is less discrimination, stigma, marginalisation and the chance to be the voice of our own lives.

As an example let us dissect what “crackpot” actually means and how it has been used against the mentally ill and those with neurological damage and injury.

‘crackpot’ is a shortened form of ‘cracked-pot’, which splits into its constituent parts, cracked and pot.

Cracked:

Cracked is itself a shortening of ‘brain-cracked’ (or cracked-brained’). ‘Cracked’ simply meant ‘impaired’; ‘faulty’. Both of these terms were current in the 17th century. For instance:

In John Canne’s A Necessity of Separation from the Church of England, 1634, we find:

If Mr. Bradshaw had found such a reason in Mr, Johnson’s writing, he would surely have called idle head, cracked-brained, fool etc.

Pot:

In the Middle Ages, ‘pot’ was used to mean ‘skull’ or ‘head’; for example, this piece from Guy de Chauliac’s translation of Grande Chirurgie, circa 1425:

Ye pot of ye heued

So, a ‘cracked pot’ was a ‘faulty head’ and crackpot is synonymous with our more recent terms ‘numbskull’, ‘blockhead’, ‘brain-dead’ etc.


Further Reading:

Here is some further information on the continued discrimination of the mentally ill depicted and perpetuated trough media:

 These key facts and statistics about mental health problems can help to challenge the myths that can contribute to the stigma that many people still face.

http://www.time-to-change.org.uk/mental-health-statistics-facts

And here is a great list of things which need to change and I suggest anyone who is unfamiliar with this movement and issue read this too:

https://mic.com/articles/121653/6-forms-of-ableism-we-need-to-retire-immediately#.LB7ZlAV1C

Upworthy-MEME

The right to vote is great; but how about the ability? Neurodiversity

Have you ever thought of the fact that the voting system is a neuro-typical system which alienates many different people with varying abilities.

I just want you to think about this….

If you don’t have to think of how you will be ABLE to vote, then this means you are privileged.

 

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Neurodiversity is a concept where neurological differences are to be recognised and respected as any other human variation. These differences can include those labelled with Dyspraxia, Dyslexia, Attention Deficit Hyperactivity Disorder, Dyscalculia, Autistic Spectrum, Tourette Syndrome, Schizophrenia, Personality Disorders, Bipolar, Psychotic depression and others…

As you may already be aware if you follow my blog that I have several illnesses, disabilities and learning difficulties. As a child my neurology was always in question, with early indications of being on the spectrum as well as being a massive contradiction with a high functioning intelligence but also several learning difficulties such as not being able to read at the appropriate level for my age, having Dyscalculia and experiencing sensory overloads. My interpersonal skills were weak as eye contact was not a strong point and I did not understand boundaries like other children. When you are seen as high functioning people do not understand your difficulties as they judge and label you; lazy, disobedient, delinquent and a trouble maker.

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Read more about this HERE

Now lets get back to the topic at hand – voting.

Voting is a right which is great, many have fought to get this right from the white privileged male and won. However this does not mean that this RIGHT is made easy for everyone to obtain. My point is – many of us can’t even if we wanted to due to being neuro-divergent, disabled and ill; my issues impact all my voting options.

Lets me give you 3 examples on why it is impossible for me to vote in this neuro-typical system in the UK:

Voting in person: This is a NO for me due to my agoraphobia, C-PTSD, Psychotic depression, ADHD and OCD – the fear of people, open spaces, small spaces, germs etc… As well as experiencing extreme anxiety attacks and becoming detached and unable to hear and process information due to derealization and depersonalization Makes this scenario impossible for me to do.

Voting by proxy: This is impacted by my psychotic depression and Borderline Personality Disorder as my psychosis and delusional thinking, tells me this would be taken and used against me or that this is mind control. My mind become split and then I am trapped in a black and white world of confusion.

Voting by mail /online registration: When I am faced with forms I get something which is called sensory overload and sometimes it is so bad I pass out from it, plus I loose time regularly and get distracted on a loop for days sometimes due to ADHD. When I was able to have a social worker this would have been taken care of by them assisting me. However this service is not available to me anymore due to the area I live in.

If you would like to know more… follow this link HERE

“There is, however, an answer to this crisis.  The concept of neurodiversity provides a paradigm shift in how we think about mental functioning.  Instead of regarding large portions of the American public as suffering from deficit, disease, or dysfunction in their mental processing, neurodiversity suggests that we instead speak about differences in cognitive functioning.  Just as we talk about differences in bio-diversity and cultural diversity, we need to start using the same kind of thinking in talking about brain differences.”

(Source: http://www.institute4learning.com/neurodiversity.php)

 

Then there is the issue of voting in a system which denies your rights and leaves you to die as there is no help available, as I slip through the cracks with others; one wonders if these are cracks or specially designed filters.

Having been politically minded and active since a young age due to my French heritage and privileged education as a child and then going on to do politics, international relations and political philosophy at degree level, my awareness for the “political systems” has been of a high standard. Engaging with others to vote, political protesting, writing to MP’s and campaigning for civil rights was just the beginning in my 20’s, however as my situation grew more bleak and my interests in alternative politics and activism grew I decided after a long process to disengage with the “neuro-typical politics game” as well as the rigid patriarchal paradigm of “the ideal political structure”. Instead I concentrated on non-profit work, anarchism as a political philosophy and fighting each day to better the lives of people who are marginalised and stigmatised. This was my way of taking back the control which had been taken from me as a human being.

All I ask is that you think of this before you next judge the “non voter”, do not say things like “if you don’t vote, you can’t complain about anything after the fact” as this is a further way to silence the unheard, the people like me cast aside through no fault of our own, for things beyond our control. Try and remember that ticking a box does not give you the right to judge others, especially if this is all you are doing to create change, think of the varied ways that a citizen of this planet could help, or make a difference.

Also shaming people for not voting is ignorant, you know nothing of another persons life and why they may feel disenfranchised or due to socio-economic /class structures has been shown their voice means nothing or does not believe in the powers that be.

How about before you write your next FB status which tells people who do not vote they are stupid, or you tell those who have decided to not vote (which is their right) to keep quiet over other issues; why not take a moment – hold back and think…

Is this really the best use of my time?

Do I know everyone’s life and experiences and what has led them to this decision which is theirs to take?

And could I be a better ally to those who have no voice?

 

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Waking up from Terror to Panic – PTSD Awake and Asleep

Art by Charlotte Farhan

Art by Charlotte Farhan

Waking up this morning was a torturous affair, opening my eyes, feeling that sensation in my stomach, the one that feels as if you dropped off the earth but your body is still looking over the edge waving you goodbye. It feels like sinking in pain – as if pain was quick sand, if I did not know better I would say someone had opened me up in an operating theatre, during my sleep and rearranged my internal organs and sewed me back up.

Laying there with only feelings not thoughts, no rational thinking commencing in this lucid state. However the pain is reminding my brain of other hurt, other ordeals. Like a back catalogue of torture, my mind runs through a long list, flashing images in front of me, in an attempt to condition me or subliminally coerce me. Then with no warning, I am awake! My fight or flight has been triggered, blood is rushing from my head to my extremities, preparing me to run away. There is no where to run, no where for me to escape this danger, for the danger only exists in my brain, my own neurology is basically trying to run me out of town.

Peoples opinions and past criticisms enter my stream of thought, “It’s all in your head”. I chuckle maniacally to myself and say repeatedly “Yes, it is indeed in my head”. The idea that this is said to us, the mentally ill, the neuro-divergent, is laughable to me at this moment. As if our species has taught itself that the head/brain/mind are not part of us, not part of our physical selves or bodies. We never say to a “physically” disabled person, its all in your legs/arms etc.  All the while my brain is trying to desperately stay in the moment and ponder on the complexities of people’s lack of understanding for anything related to the unseen, our illnesses are less believable than Father Christmas, fairies, lizard people and the all powerful dude sat above us and the evil one living down in the depths of hell, but mental illness is utterly unbelievable without being in a straight jacket throwing yourself into walls, dribbling and wanting to kill people – because of course it is perfectly believable that the mentally ill are criminals.

My body is still preparing itself for battle. The pins and needles in my arms and legs are going crazy, there seems to be no blood left above my heart. My mouth becomes very dry and then my need to vomit takes over, as apparently the sickness is trying to escape me. The blurred vision begins, bringing with it more panic – I am certain I am about to die. With my breath getting quicker and my body perspiring at a scary level, the only option is to lay on the floor and accept my fate.

With no ability to leave the house, on my own – my only choice is to call someone, something I can only do with a few people. So with my double vision, tapping away at my keypad, the ring tone begins…

“Lisa?? I am dying! I can’t do this anymore, I am sure I am going to die alone here”, the uncontrollable need for safety and reassurance is like someone giving me oxygen, I hear Lisa’s voice, she knows how this feels, so I do not need to explain. Lisa try’s to distract me and get my brain out of the immediate fight or flight state that I am in, trying to focus my attention outside of myself, so that every sensation that is felt is not interpreted as a sign of dying. Eventually she gets me from the bathroom to my living room, all I can do is sedate myself now, lay in my chair and hope to sleep.

Before long sleep takes over, my parallel world opens up, a world created from old buildings which are derelict shells, past homes, schools and locations where trauma was created. There is no day or time here, no summer and no order. It is grey with darkness lurking everywhere, like every horror film ever watched muddled up with my own life events. Old faces appear behind corners and in the darkness, natural disasters erupt on a frequent rotation, buildings collapse without warning, stair cases and corridors never end, fluorescent lights flicker, music plays in the distance – songs played as soundtracks to the violence endured, smells are vivid with scents of perfumes and aftershaves by the oppressive abusers. This is where I come to rest. This – the place my mind rebuilds and orchestrates every night, a haunting performance of memories and trauma.

Sometimes the only thing my brain conjures up are flash-backs, which can be on repeat for what feels like an entire life time. The brain is able to retrieve the most long forgotten detail and with a force of pure malevolence this detail is forced down your gullet like an over-fed goose. Chocking on the terror and the overwhelming taste of bitterness, my eyes often feel pulled open, when in fact they are closed – being forced to face the shame. Upon awaking from this, the particular detail is seared into my conscious mind and begins infecting my hippocampus and amygdala, whilst poisoning my thalamus and hypothalamus, and the sickness spreads to my peripheral cortex and temporal cortex. Soon I start to feel physical pain in the places most violated, there is no time to slowly open my eyes, stretch and ponder my day, the alarm has been raised, high alert is here and my day begins again as it ends.

Here are some facts about Post Traumatic Stress Disorder, brain damage and sleep:

“When patients re-experience traumatic events and flashbacks during sleep, these nightmares can be accompanied by real physical reactions to feelings of fear, such as a pounding heart and sweating. The re-experience can occur at random or might be triggered by sights, sounds, or smells that remind the person of the trauma. Therefore, patients suffering from PTSD often try to avoid objects, places, events, or even emotions that trigger memories of the traumatic event.

In addition to nightmares, people with PTSD can manifest a state of hyperarousal, in which the individual is subconsciously “on guard” to protect himself, and as a result feels anxious, has difficulty falling asleep, is irritable, suffers emotional outbursts, or is easily startled.”

(  https://sleepfoundation.org/sleep-topics/ptsd-and-sleep )

“Psychological trauma has great effects on physical aspects of patients’ brains, to the point that it can have detrimental effects akin to actual physical brain damage. The hippocampus, as mentioned above, is involved in the transference of short-term memories to long-term memories and it is especially sensitive to stress. Stress causes glucocorticoids (GCs), adrenal hormones, to be secreted and sustained exposure to these hormones can cause neural degeneration. The hippocampus is a principal target site for GCs and therefore experiences a severity of neuronal damage that other areas of the brain do not. In severe trauma patients, especially those with post-traumatic stress disorder, the medial prefrontal cortex is volumetrically smaller in size than normal and is hyporesponsive when performing cognitive tasks, which could be a cause of involuntary recollection (intrusive thoughts). The medial prefrontal cortex controls emotional responsiveness and conditioned fear responses to fear-inducing stimuli by interacting with the amygdala. In those cases, the metabolism in some parts of the medial prefrontal cortex didn’t activate as they were supposed to when compared to those of a healthy subject.”

Tarara, R., Else, J.G., Suleman, M.A., Sapolsky, R.M. (1989). Hippocampal damage associated with prolonged and fatal stress in primates. J Neurosci 9:1705-1711.

McNally, Richard J. (2006) Trends in Cognitive Science, Volume 10, Issue 6: Cognitive Abnormalities in Post Traumatic Stress Disorder. P271-277)

 

My open letter to MIND – The mental health charity; Dear Mind, please help me!

Dear Mind,
 
my name is Charlotte Farhan and I suffer from C-PTSD, BPD and Psychotic Depression, from these illnesses I then suffer as symptoms other illnesses such as derealisation, agoraphobia, OCD, GAD, BDD and adult ADHD.
 
I have been in the mental health system since I was 12 and I have had many issues with malpractice, abusive care, neglect and unprofessional dangerous physicians treat me.
 
I have been told a few times and only just recently there is nothing they can do for me anymore, I am too severe and complex?
 
I have not been out alone for over 9 years and am housebound most days, I have no earning possibilities (however I am an artist and I run a non-profit with the help of others – this keeps me having a purpose) I have no family and my husband is left caring for me and is on minimum wage, I have no benefits as I can’t use the phone due to my illnesses (paranoia of being bugged) so can not get the forms, the forms hurt my brain so even if I had them I can’t fill them out without support.
 
I also have diabetes, chronic erythema nodosum and PCOS, which due to my mental illnesses I can not access any care for these. I can’t go to the surgery on my own when my husband is at work, it is closed by the time he returns, sometimes I wouldn’t be able to go at all I as I can’t always go outside, once a week is normally what I achieve but a lot of planning goes into this. And was told by my GP that I can not get home care as mental illness is not considered within this context. So I am left to die. No bloods being taken, no diabetic checks, no check ups on my chronic erythema nodosum which is getting worse, no care or rights for my PCOS so no care of rights for my fertility.
 
I am at home trying to survive hourly, I do not know how much longer we can live like this?
 
I am a very strong person, as I have had to be, but really I am not at all. Everyday I fight for mental health rights, so that I may one day be able to change this for me and others like me, which there are so many!!
 
I am asking your for help? I need you to help me get my voice heard so that I do not lose my battle, so that my husband does not have to carry this on his shoulders alone, so that all the people I have spoken to who are in my situation are heard.
We have no rights, neurotypical privilege is everywhere, we can’t survive without your help.
 
I have been struggling since I was an infant, I am a survivor of child sexual abuse, sexual violence as a teenager and sexual assault (which was in an adolescent unit) and both my parents have severe mental illness too, who I do not speak to due to their emotional and physical abuse, Mother with Bipolar 1 with mixed states and BPD and a Father with alcoholism and then alcohol induced psychosis, they have been in and out of psychiatric hospitals when I was a child. I was even left alone at 12 for many months whilst my mother was in a psychiatric ward, that was due to the fact she went private so social services were not alerted.
 
Please read this blog post and please let me know if I can share my story further? Maybe someone will help me? Maybe I will be able to live a better life or more managed life? Help me have the same rights as others!

Why is Severe Mental Illness left untreated in the NHS Mental Health Services:

 
I am desperate so have nothing to lose!
I hope to hear from you.
Thank you for your time xxx
 

 

The Able in This Diverse Universe writing competition – focusing on ableism, disability, access and overcoming.

 

I am so honoured to be one of the Judges for the Able in This Diverse Universe writing competition alongside Karrie Higgins, Professor Dr. Kwame Brown and Jacqueline Cioffa.

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Find out about the other judges of this very important competition by clicking the link: Meet the Judges for Able in This Diverse Universe

Able in This Diverse Universe Essay Competition

So how and what is this all about?

“Established essayist and word-mage Karrie Higgins invites you to participate in a nonfiction writing competition on the themes of ableism, disability, access and overcoming. All submissions fees benefit the training and care of Noah Ainslie’s future Autism service dog, Appa. This competition will also serve to raise awareness of invisible illness and ableist bias.

Noah’s neurodiversity often manifests as sensory overwhelm. He has been learning coping mechanisms for six years, but still visibly struggles when it comes to conforming to neurotypical standards. He is high function on the spectrum which means he doesn’t “look like” he’s disabled. He is subjected to ableist expectations, often very aggressively and in public.

With Appa’s help, Noah will have access to the public spaces his anxiety prevents him from entering. More importantly, Noah will have a companion who loves him for who he is and does not judge his inability to conform to ableist public standards. To learn more about Noah, visit his GoFundMe page.”

Thank you from Appa and Noah.

Thank you from Appa and Noah.

Follow this link to enter the competition:

https://honeyquill.submittable.com/submit/50077

To enter this competition, please use the following guidelines for all submissions.Your work should be:

  • nonfiction
  • no more than 2,000 words
  • in PDF or docx format
  • without identifying information in your document as judging will be blind 

All entries are require a $15 submission fee which will directly benefit Noah and Appa. You are welcome to enter as many times as you want.

This competition will run from December , 2015 – February 29, 2016. Winners will be notified March 31, 2016.

The winning essayists will receive $250 cash, and publication on Karrie’s website, A True Testimony. Second and third place winners will also receive awards. 

Four Paws for Noah

Four Paws for Noah

Please get involved with this!

You can:

enter the competition

donate to the GoFundMe page

share this with friends and family via social media or email

This is such an important cause and the issues we are asking you to address, affect so many, including myself.

I am also in the process of getting a service dog for my agoraphobia and PTSD.

I live in an able world where I too have been rejected and expected to “fit in” or expected to accept defeat, so please for people such as myself and Noah, support this with an open heart and mind.

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Thank you for reading xxx